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DiscussionEssential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Nov 4 11:06am | Replies (597)Comment receiving replies
Replies to "If your platelets are only in the 500s I personally would not want to start with..."
Unless there is a need to get platelets down very fast, hematologists now try to start patients at a low dose and work up. This reduces side effects. I was in 800s and started with 500 mg per day. After a year, platelets had gone to 600s, and another 500mg dose was added 3x per week. I stay in the 400s now, and hemo says that's fine.
That said, we all have different clot risks based on age, smoking, mutation type, etc. So there is no one size fits all dosing strategy.
I do think that somebody in the 500s prescribed 1000 mg right off the bat should certainly ask why they couldn't start with a lower dose and work up as needed.