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Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

Posted by Tracy Lynne Daley @tracylynnedaley72, Jul 23, 2015

My name is Tracy Daley. I live in Omaha, Nebraska. My diagnosis is a jumbled mess that I am sorting out right now. Can anyone tell me if anyone in this support group has been diagnosed and/or treated for acoustic neuroma, a benign tumor affecting the acoustic nerve, which is the eighth cranial nerve in your brain? This nerve is connected to your ear. These tumors initially affect a person's balance and hearing and then other symptoms may appear. This is a very rare tumor and one out of 100,000 people and 8-9% of the intracranial tumors. If no one has heard of this tumor, I understand.

Interested in more discussions like this? Go to the Brain Tumor Support Group.

Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 1, 2018
In reply to @rose4622 "I went for my PT evaluation. My Medicare pays for it. No problem there. The eye..." + (show)
@rose4622

I went for my PT evaluation. My Medicare pays for it. No problem there. The eye exercises caused me to have more severe balance problems and vertigo is back. I saw my Dr yesterday. She said i had plateaued in my recovery now I am pushing the brain for more control. It will get better. I will be going to PT once a week to work on building strength in my legs and core and doing eye exercises at home 2x a day.

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That all sounds good, @rose4622, I'm glad that your Medicare is covering your PT.
I had vestibular therapy for my balance/vertigo and I remember that the eye exercises made things worse before they got better. At that time I was still working full time and would always have to schedule the eye exercises at the end of the day, so I wouldn't be sick/dizzy during the work day.
After a while, though, everything got much better.

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1 reply
rose4622 | @rose4622 | Dec 1, 2018
In reply to @hopeful33250 "That all sounds good, @rose4622, I'm glad that your Medicare is covering your PT. I had..." + (show)
@hopeful33250

That all sounds good, @rose4622, I'm glad that your Medicare is covering your PT.
I had vestibular therapy for my balance/vertigo and I remember that the eye exercises made things worse before they got better. At that time I was still working full time and would always have to schedule the eye exercises at the end of the day, so I wouldn't be sick/dizzy during the work day.
After a while, though, everything got much better.

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That sounds hopeful!

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Teresa, Volunteer Mentor | @hopeful33250 | Dec 1, 2018
In reply to @rose4622 "That sounds hopeful!" + (show)
@rose4622

That sounds hopeful!

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You've made tremendous progress, @rose4622, given the seriousness/length of your surgery. You deserve a pat on the back, you've done well. How many days last week did you work?

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1 reply
rose4622 | @rose4622 | Dec 2, 2018
In reply to @hopeful33250 "You've made tremendous progress, @rose4622, given the seriousness/length of your surgery. You deserve a pat on..." + (show)
@hopeful33250

You've made tremendous progress, @rose4622, given the seriousness/length of your surgery. You deserve a pat on the back, you've done well. How many days last week did you work?

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Three 1 hour sessions on different days.

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2 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 2, 2018
In reply to @rose4622 "Three 1 hour sessions on different days." + (show)
@rose4622

Three 1 hour sessions on different days.

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That sounds reasonable, @rose4622. I hope you have a good week.

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1 reply
rose4622 | @rose4622 | Dec 3, 2018
In reply to @hopeful33250 "That sounds reasonable, @rose4622. I hope you have a good week." + (show)
@hopeful33250

That sounds reasonable, @rose4622. I hope you have a good week.

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Thanks Teresa

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 6, 2018

@rose4622

Just thinking about you and hoping that your second week back to work is going well.

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1 reply
rose4622 | @rose4622 | Dec 9, 2018
In reply to @hopeful33250 "@rose4622 Just thinking about you and hoping that your second week back to work is going..." + (show)
@hopeful33250

@rose4622

Just thinking about you and hoping that your second week back to work is going well.

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Hi Teresa
Only got to work with one client because the office parking lot was replaced. That was good for me because my physical therapy made my balance problems worse. It's normal they said as we are challenging the brain . I am tempted stop going but if helps eventually I want to keep going.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Dec 16, 2018
In reply to @rose4622 "Hi Teresa Only got to work with one client because the office parking lot was replaced...." + (show)
@rose4622

Hi Teresa
Only got to work with one client because the office parking lot was replaced. That was good for me because my physical therapy made my balance problems worse. It's normal they said as we are challenging the brain . I am tempted stop going but if helps eventually I want to keep going.

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Hi @rose4622,

Yes, I also experienced more dizziness and nausea when beginning PT for balance issues. That is certainly normal. It does usually get better, though. I'm glad that you had a shorter work week.

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rose4622 | @rose4622 | Dec 17, 2018
In reply to @rose4622 "Three 1 hour sessions on different days." + (show)
@rose4622

Three 1 hour sessions on different days.

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I bumped my head hard getting in my husband's car yesterday and ended up in er with a concussion. It has been miserable I lost conscience for short times while vomiting. So scary!

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