How does bronchiectasis progress?
Hi all,
As I am reading, that bronchiectasis is a chronic and progressive disease.
How does it progress based on your experience? I seem to remember that some people are able to keep the condition stable. Does cough make the condition worse?Your experience is greatly appreciated.
Thanks!
Ling
Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.
Sue, I always am glad to read your comments.
I have MAC and was unable to take the meds.
I am under observation by pulmonary doctor . I am asymptomatic except for
tiring easily.
Thank you for your words of encouragement !
You are welcome. May I ask if you are doing airway clearance and using a saline neb? I truly believe these have kept me going in my 3+ years since quitting the antibiotics. I feel "naked" right now because my nebulizer died, and the backup is sitting on a shelf 1500 miles away! I am waiting for a new one and using my Aerobika.
Sue
No, I am not doing airway clearance.
Airway clearance is one of the cornerstones of "watchful waiting." The efforts help expel the sticky mucus where MAC grows and keep your lungs healthy. There is evidence that 7% saline also helps reduce the number of bacteria able to grow. In my humble opinion, waiting without doing airway clearance is just waiting for the infection to get worse.
Can you consult with the doc (and possibly a respiratory therapist) about airway clearance?
Otherwise, come on back to Connect and do some reading in our support group.
Sue
Thank you for your reply!
I agree with you, Sue. I am 85 y/o with Bronchiectasis and MAC. I am not being treated with antibiotics but if it wasn't for airway clearance I would cough all the time.
I have two nebulizers and two battery operated back up options if the electricity were to go out. In my case I could not miss a day. If you can afford it have at least one back up option!
I have 2 backups also, but I got cocky and left them on a shelf at home this Winter! Never again.
Sue
I will be 90 in two months, and I have been diagnosed with Mac. My doctor never recommended a nebulizer. When I inquired about one, he did prescribe it. I have not used it very much, because the fact that he did not prescribe it, I felt it might not be that beneficial. However, Reading these comments from people who use them, I get the ideas are very beneficial. My doctors want me to take the big three meds, but I am very reluctant. Any advice or comments would be greatly appreciated.
Hello! I have bronchiectasis without MAC at this time. My pulmonologist started me on a nebulizer right away. He then advanced me to a Hillrom volara nebulizer and a percussion vest. Since using these I have more production of sputum. Have been following with pulmonology for 3 years now and have had a stable CT since my twice daily nebulizing. Is your doctor a pulmonologist? The nebulizing has been so beneficial to me and I believe has helped to keep my lungs healthy. The side effects of the big 3 seemed pretty harsh. Would weigh that carefully. Is an infectious disease doctor wanting to prescribe those? There people on this forum {especially the mentors} who can give you great insight to the treatment. It"s hard to advise not knowing the severity of how you are feeling but wish you the best of luck.