How does bronchiectasis progress?

Posted by @ling @wangling, Mar 31, 2023

Hi all,
As I am reading, that bronchiectasis is a chronic and progressive disease.
How does it progress based on your experience? I seem to remember that some people are able to keep the condition stable. Does cough make the condition worse?Your experience is greatly appreciated.
Thanks!
Ling

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@sueinmn

@wangling and @equanimous
Progression in lung disease is a puzzle. I'm not sure anyone has an exact answer, but there are some ways to slow disease progress that most experts will agree on.

First, stop any and all smoking and vaping, or exposure to secondhand smoke.
Second AIRWAY CLEARANCE with 7% saline, if recommended.
Stay as healthy as you can with good diet, rest as much exercise as possible, even when you don't feel like it.
Avoid respiratory infections - stay away from sick people, indoor crowds in flu and cold season, mask when you can't avoid being "out there."
Follow treatment plans including maintenance meds, keeping other conditions under control (asthma, allergies, GERD, diabetes, blood pressure...) to avoid taxing your body.
Keep up with your doctor visits and tests, so changes are identified early and can be treated quickly.
Finally, a positive attitude goes a very long way. It helps keep you moving, and living rather than simply existing.

My mantra: "Bronchiectasis is what I have, not who I am. I cannot cure it, but I can manage it. I am living my best life in spite of it, and the other chronic conditions I have. "
Sue

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Sue, I always am glad to read your comments.
I have MAC and was unable to take the meds.
I am under observation by pulmonary doctor . I am asymptomatic except for
tiring easily.
Thank you for your words of encouragement !

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@ansley

Sue, I always am glad to read your comments.
I have MAC and was unable to take the meds.
I am under observation by pulmonary doctor . I am asymptomatic except for
tiring easily.
Thank you for your words of encouragement !

Jump to this post

You are welcome. May I ask if you are doing airway clearance and using a saline neb? I truly believe these have kept me going in my 3+ years since quitting the antibiotics. I feel "naked" right now because my nebulizer died, and the backup is sitting on a shelf 1500 miles away! I am waiting for a new one and using my Aerobika.
Sue

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@sueinmn

You are welcome. May I ask if you are doing airway clearance and using a saline neb? I truly believe these have kept me going in my 3+ years since quitting the antibiotics. I feel "naked" right now because my nebulizer died, and the backup is sitting on a shelf 1500 miles away! I am waiting for a new one and using my Aerobika.
Sue

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No, I am not doing airway clearance.

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@ansley

No, I am not doing airway clearance.

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Airway clearance is one of the cornerstones of "watchful waiting." The efforts help expel the sticky mucus where MAC grows and keep your lungs healthy. There is evidence that 7% saline also helps reduce the number of bacteria able to grow. In my humble opinion, waiting without doing airway clearance is just waiting for the infection to get worse.
Can you consult with the doc (and possibly a respiratory therapist) about airway clearance?
Otherwise, come on back to Connect and do some reading in our support group.
Sue

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@sueinmn

Airway clearance is one of the cornerstones of "watchful waiting." The efforts help expel the sticky mucus where MAC grows and keep your lungs healthy. There is evidence that 7% saline also helps reduce the number of bacteria able to grow. In my humble opinion, waiting without doing airway clearance is just waiting for the infection to get worse.
Can you consult with the doc (and possibly a respiratory therapist) about airway clearance?
Otherwise, come on back to Connect and do some reading in our support group.
Sue

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Thank you for your reply!

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@sueinmn

Airway clearance is one of the cornerstones of "watchful waiting." The efforts help expel the sticky mucus where MAC grows and keep your lungs healthy. There is evidence that 7% saline also helps reduce the number of bacteria able to grow. In my humble opinion, waiting without doing airway clearance is just waiting for the infection to get worse.
Can you consult with the doc (and possibly a respiratory therapist) about airway clearance?
Otherwise, come on back to Connect and do some reading in our support group.
Sue

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I agree with you, Sue. I am 85 y/o with Bronchiectasis and MAC. I am not being treated with antibiotics but if it wasn't for airway clearance I would cough all the time.

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@sueinmn

You are welcome. May I ask if you are doing airway clearance and using a saline neb? I truly believe these have kept me going in my 3+ years since quitting the antibiotics. I feel "naked" right now because my nebulizer died, and the backup is sitting on a shelf 1500 miles away! I am waiting for a new one and using my Aerobika.
Sue

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I have two nebulizers and two battery operated back up options if the electricity were to go out. In my case I could not miss a day. If you can afford it have at least one back up option!

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@irenea8

I have two nebulizers and two battery operated back up options if the electricity were to go out. In my case I could not miss a day. If you can afford it have at least one back up option!

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I have 2 backups also, but I got cocky and left them on a shelf at home this Winter! Never again.
Sue

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@sueinmn

Airway clearance is one of the cornerstones of "watchful waiting." The efforts help expel the sticky mucus where MAC grows and keep your lungs healthy. There is evidence that 7% saline also helps reduce the number of bacteria able to grow. In my humble opinion, waiting without doing airway clearance is just waiting for the infection to get worse.
Can you consult with the doc (and possibly a respiratory therapist) about airway clearance?
Otherwise, come on back to Connect and do some reading in our support group.
Sue

Jump to this post

I will be 90 in two months, and I have been diagnosed with Mac. My doctor never recommended a nebulizer. When I inquired about one, he did prescribe it. I have not used it very much, because the fact that he did not prescribe it, I felt it might not be that beneficial. However, Reading these comments from people who use them, I get the ideas are very beneficial. My doctors want me to take the big three meds, but I am very reluctant. Any advice or comments would be greatly appreciated.

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Hello! I have bronchiectasis without MAC at this time. My pulmonologist started me on a nebulizer right away. He then advanced me to a Hillrom volara nebulizer and a percussion vest. Since using these I have more production of sputum. Have been following with pulmonology for 3 years now and have had a stable CT since my twice daily nebulizing. Is your doctor a pulmonologist? The nebulizing has been so beneficial to me and I believe has helped to keep my lungs healthy. The side effects of the big 3 seemed pretty harsh. Would weigh that carefully. Is an infectious disease doctor wanting to prescribe those? There people on this forum {especially the mentors} who can give you great insight to the treatment. It"s hard to advise not knowing the severity of how you are feeling but wish you the best of luck.

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