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PTE Secondary after kidney Transplant Experiences

Transplants | Last Active: Apr 19, 2023 | Replies (8)

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@l0lag0lag0b3

Hello to all my Friends

After 3 years of struggle with PTE secondary, I finally have a taste of success !

I must have read at least 30-35 case studies on this issue world wide & at one point I began to think that I am refractory to the treatment of ARBs... almost gave up.

Finally with lot of analysis and self reflection and determination .. I changed my doctor after lot of back & forth with him (Dr) .. he was rigid and not willing to budge...finally going against advice of all people near and dear to me ! I switched to a new doctor in less than 3 months PTE secondary issue for now has been resolved. (Proof of concept has been verified) I will always wonder what was my old Dr's inhibition... ( I want to forget about him real fast)

Now for the first time in 3 years my CBC diff. profiles looks Normal.... yeah I feel extremely positive & this has given me a psychological booster.

Regards to all

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Replies to "Hello to all my Friends After 3 years of struggle with PTE secondary, I finally have..."

Hello, @l0lag0lag0b3, Congratulations !
I am thrilled to learn of your success! You are indeed the master of research and determination for all of the research that you have studied. After your 3 years of struggle with PTE secondary, you deserve your 'Taste of Success'. finally have a taste of success !

Will you share with when you had your nephrectomy? Was it performed at Mayo? What are some physical improvements are you currently experiencing?

@stephanierp and @jolinda - I invite you to meet @l0lag0lag0b3 and to join his celebration.