Acute myeloid leukemia (AML): What can I expect?

Thanks for your comments an info yes pretty nervous about it but I have to go for it an stay strong an hopefully come out on other side an yes u have to trust your docs an the team

Well, I promise to stick with you through all of it and I know many others on here will be right along with you. ☺️
One thing that will be required is for you to have a caregiver who will accompany while you recover from the transplant, especially the first few months. Do you live near the clinic that will do the transplant?

I also had an allogenic transplant in 2020 to treat AML. I am approaching my 3rd “Rebirthday” and am doing great! I had some bumps along the road since then - high liver enzymes and skin issues due to sun exposure because of my antifungal medication. However, I golf 3-4 days/week and play pickleball! I was fortunate to live 1-1/2 hours from the Mayo Clinic and had a great team there! I am happy to share my experience and answer any questions. I wish you all the best in your treatment!

Hello,
My husband has AML, recently as of 2/20/23. We are wondering if there is a virtual support group out there. I have not been able to find one.

Hello,
My husband has AML, recently as of 2/20/23. We are wondering if there is a virtual support group out there. I have not been able to find one.

Hello @tweetyslp, well, you came to the right place because there are a number of us in the Connect support group who have had AML and we’d love to help you and your husband with this new adventure he’s on.
My diagnosis for AML was 2/6/19 and after several rounds of Chemo to treat that, I received a bone marrow transplant at Mayo Rochester the end of June 2019.
Fellow members, @edb1123 @kt2013 @alive and several others have also had AML and transplants. We’re all doing really well and here to offer hope and encouragement to anyone who is facing this blood cancer.

If your husband was diagnosed in February, he’s most likely had one or two weeks of chemo. How is he doing with his treatment and has a bone marrow transplant been suggested for him?

Hi @yusbe, Welcome to Mayo Connect where you’ll be able to talk with other members who also have been diagnosed multiple myeloma. (MM). You’ll find everyone helpful and willing to share their experiences and offer some encouragement for you and your husband. I know it’s frightening getting a blood cancer diagnosis but there are treatments which can help keep the Multiple Myeloma under control.

Below, I’ve posted a few links to get you connected with other MM members where you’ll meet @gingerw,
@richardab @jimbond48 @carolee888 @tristram @cat1952 @patty67 and several others who either have MM or have family members with the condition.

Some are older conversations but you can reverse the order to the most recent replies. There is a button under the opening discussion paragraph which says “oldest to newest”. Just click there and the order will provide the newest answers for you.
Feel free to jump into any conversation. If you want to reply directly to a specific comment you’ve read, simply click the blue reply button and that will open a link with that member’s @name so they will get a notification.

~~Multiple Myeloma
https://connect.mayoclinic.org/discussion/multiple-myeloma-1/
~~Want to talk about Multiple Myeloma: Anyone else?
https://connect.mayoclinic.org/discussion/multiple-myeloma-299aae/
These links below are good sources to give you a little more information about MM with how the diagnosis is determined, symptoms and possible treatments.
https://www.mayoclinic.org/diseases-conditions/multiple-myeloma/symptoms-causes/syc-20353378
~~
https://www.cancer.org/cancer/multiple-myeloma.html
Your husband was just newly diagnosed so everything feels overwhelming and daunting because you don’t know what to expect. It can really help calm fears when you’re able to talk with other who are going through a similar experience.

Has his doctor talked about a treatment plan?

Hi Howard, If I remember correctly I think you had the first round of chemo beginning March 20 so that means you’re getting ready for another session in a few days. Usually with monthly chemo, we start feeling pretty good again by the end of the month, just in time for that second round. I know…not something to look forward to, but at least now you know that there’s a recovery period. 😊

How are you feeling? Have you had any bloodwork done to see if there’s a change in you numbers?

Muchas gracias por toda su explicación. El diagnóstico es reciente y aún no determinan la estrategia de tratamiento con la que lucharemos. Vivimos en Cuba y los recursos son escasos. Dios nos ayude a encontrar uno potente que nos dé una esperanza de vida. Trataré de seguir en contacto con usted. Gracias de corazón. Abrazo a todos desde Cuba.