Bedtime Blues

Posted by ckscoville @ckscoville, Aug 27, 2020

I'm posting this in hopes that somebody might have had the same experience ...and hopefully found a solution.

I currently do three breathing treatments a day -- with a nebulizer and a SmartVest concurrently -- and I'm on a rotation of antibiotics (Augmentin, Doxycycline, and Bactrim) for a very stubborn Achromobacter infection. During a typical day, I cough up a lot of sputum (usually light to dark green and sticky), especially in late morning.

However, when I finally go to bed at night, I go through a really horrible 30-45 minutes of coughing up stuff almost non-stop. I usually end up coughing up so much that my chest hurts like crazy at the end of it, and leaves me totally exhausted as well. It's gotten to the point that the thought of going to bed depresses me because I know what's in store for me. It's also not unusual for me to wake up in the middle of the night to cough up more stuff.

I don't know if the change in posture (lying down) is what triggers these really bad coughing fits, but I'm desperate for a solution.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

@flib

I have a prescription for a codeine cough med. Like you, I never lie down without coughing; on nights when it won't stop I take a swig. Just having it often gets me through. I only take it when I've reached my level of endurance. I sleep on my left side as it seems to be the best position for drainage. I've had this miserable (fill in with your own swear words) disease for over ten years. I'm still here, still longing for a peaceful going to bed. I also get out of bed and bend over from the waist and often a big mess will come up. Best of luck. Flib

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@flib I'm right there with you, Flib. I have a bottle of cough syrup with codeine....I also cough when I lie down...ALL THE TIME...so when I can't take it anymore I'll take that cough syrup. It helps to keep your sanity. I know we can't take it all the time but it sure is nice to have it when you're having a bad coughing night. Nan

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@sueinmn

@ckscoville When my MAC was at its worst in 2018, I had that experience. It helped to lie down about 2 hours before bedtime & get the whole coughing fit started, sit up & cough, then it was largely done. It also helped for the first few months of treatment to sleep on a wedge so I was never flat (or in my recliner if I was shaking the bed.)
Sue

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I just started my SMARTVEST which I’m doing twice a day and I nebulize with just saline twice a day. Do you do the saline nebulizer first or the SMARTVEST?

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@med08

I just started my SMARTVEST which I’m doing twice a day and I nebulize with just saline twice a day. Do you do the saline nebulizer first or the SMARTVEST?

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I do not and have not used a vest. My docs (pulmonologist & primary) said I am not a candidate due to arthritis and my small size. I find even a vibrating massage chair at the nail salon to be painful.
Sue

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@sueinmn

I do not and have not used a vest. My docs (pulmonologist & primary) said I am not a candidate due to arthritis and my small size. I find even a vibrating massage chair at the nail salon to be painful.
Sue

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Thank you.

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@med08

I just started my SMARTVEST which I’m doing twice a day and I nebulize with just saline twice a day. Do you do the saline nebulizer first or the SMARTVEST?

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I do saline first then smart vest. You can do them at the same time but I find that overwhelming!

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Have you tried sleeping on a 30 degree foam wedge (as well as your favourite pillow)? My pulmonologist recommended it and it helps my night time coughing. It wasn't difficult to get accustomed to using.

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Yes, I understand completely the nighttime “dreads”. I tried various strategies to ease the cough and phlegm nighttime problems. I found a few helpful routines. First, I nebulize without my vest prior to bedtime. This seems to dry up some of the phlegm causing a milder less forceful cough. Secondly, I changed bedtime position by NEVER sleeping on my back or any reclining position. I start the night sitting up in bed while reading a short devotional. Next if the coughing has calmed, I slide to a side position and hopefully fall asleep. It has worked for me and I can usually sleep through the night. I also keep by my bedside a Halls cough drop to use if needed. A side note… my cough was so bad that I purchased an adjustable bed frame and mattress to help maintain a better position. I found it of little help and reverted back to me controlling the position changes. We are all different but hopefully some of my suggestions will help you. I am also on Doxycycline and find the sleep disturbances side effects cause me as much or more problems than the coughing. Oh well!!!. One more obstacle to overcome. Best of luck and hope you find relief.

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@liz440

I do saline first then smart vest. You can do them at the same time but I find that overwhelming!

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Thank you. ♥️

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I joined a facebook group called Lung Matters: covid, bronchiectasis, mac, NTM… and the woman who started the group developed a guide that includes airway clearance techniques. One of the things she does is a final lung clearance at the end of the day, which I’ve tried and it’s helpful in getting out any sputum left in your airways that might interfere with sleep. You’re still coughing up goop but at least (for me, anyway) it feels more deliberate and you don’t have to dread the coughing when you go to bed. It’s a good manual and worth the read.

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@med08

I just started my SMARTVEST which I’m doing twice a day and I nebulize with just saline twice a day. Do you do the saline nebulizer first or the SMARTVEST?

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I use the vest and nebulize at the same time. I’m usually finished with the saline before the vest time (20 minutes) is finished. It’s nice to be able to do them at the same time unless you are too sensitive to use both together.

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