1. < MAC & Bronchiectasis

Anyone have any nebulizer recommendations?

Posted by marlin @marlin, Nov 3, 2021

Does anyone have any nebulizer recommendations. Would like something compact and easy to clean. Also any online sites that people recommend to get your supplies such as nebulizer and saline vials from? briefly looking it seems like there are a lot of options and they are fairly inexpensive.

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sallyb827 | @sallyb827 | Apr 12, 2023
In reply to @becleartoday "I have three nebulizers. The one I use most days, the workhorse, is my Ombra. It’s..." + (show)
@becleartoday

I have three nebulizers. The one I use most days, the workhorse, is my Ombra. It’s what they recommend at National Jewish Health in Denver Colorado.

I like it because I can attach my Aerobika to the nebbing cup and it cuts down on time. It’s also my most powerful machine.

Best,
Linda Esposito

Jump to this post

Linda,
What model Ombra do you own?
Thanks,
Sally

REPLY
becleartoday | @becleartoday | Apr 12, 2023

Hi Sally,
I have the Philips Innospire Go. It has been discontinued. I also have the Pari Trek S for traveling. It is very reliable.
Best,
Linda Esposito

REPLY
becleartoday | @becleartoday | Apr 12, 2023

I have the Ombra by Monaghan.
https://www.monaghanmed.com/product/aeroeclipse-xl-r-ban-nebulizer-with-ombra-compressor/
Very reliable. My daily machine. I use the Breath Actuated Nebulizing cups so that I do not put a lot of medication into my home environment.

Best,
Linda Esposito

REPLY
2 replies
greentree | @greentree | Apr 12, 2023

I just ordered the Pari Trek S compact neb I had a good phone contact with the rep at Just Nebulizers. After reading above comments I wonder if this was a good choice. I amlooking for a light weight, portable neb that is efficient and not too noisy
I would appreciate any feedback on the Pari. I will return unopened if it seems there is a better one out there
Thank you!
Helene

REPLY
sallyb827 | @sallyb827 | Apr 13, 2023
In reply to @becleartoday "I have the Ombra by Monaghan. https://www.monaghanmed.com/product/aeroeclipse-xl-r-ban-nebulizer-with-ombra-compressor/ Very reliable. My daily machine. I use the Breath..." + (show)
@becleartoday

I have the Ombra by Monaghan.
https://www.monaghanmed.com/product/aeroeclipse-xl-r-ban-nebulizer-with-ombra-compressor/
Very reliable. My daily machine. I use the Breath Actuated Nebulizing cups so that I do not put a lot of medication into my home environment.

Best,
Linda Esposito

Jump to this post

Linda,
Thank you for this info. How long does it take to nebulize using the nebulizer with the aerobika?
Does the machine easily release the exhaled vapor?
Thank you for answering all my questions.
Do you huff cough also?

REPLY
1 reply
becleartoday | @becleartoday | Apr 13, 2023
In reply to @sallyb827 "Linda, Thank you for this info. How long does it take to nebulize using the nebulizer..." + (show)
@sallyb827

Linda,
Thank you for this info. How long does it take to nebulize using the nebulizer with the aerobika?
Does the machine easily release the exhaled vapor?
Thank you for answering all my questions.
Do you huff cough also?

Jump to this post

Hi Sally! It takes about 10 minutes, depending on whether I use the continuous mode or breath actuated mode. I like to use breath actuated mode because you do not waste medication. And it keeps your home environment cleaner. Check out this video. About 10 minutes in they start talking about nebulizing and the aerobika. https://youtu.be/LJXVTSEW44o

Best,
Linda Esposito

REPLY
1 reply
sallyb827 | @sallyb827 | Apr 13, 2023
In reply to @becleartoday "Hi Sally! It takes about 10 minutes, depending on whether I use the continuous mode or..." + (show)
@becleartoday

Hi Sally! It takes about 10 minutes, depending on whether I use the continuous mode or breath actuated mode. I like to use breath actuated mode because you do not waste medication. And it keeps your home environment cleaner. Check out this video. About 10 minutes in they start talking about nebulizing and the aerobika. https://youtu.be/LJXVTSEW44o

Best,
Linda Esposito

Jump to this post

Thank you, Linda!
Sally

REPLY
wsbme74 | @wsbme74 | Apr 14, 2023

Hi. A tagalong question: wondering what people are liking instead of the Phillips InnospireGO since it's no longer made? And why isn't it?!

REPLY
1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Apr 14, 2023
In reply to @wsbme74 "Hi. A tagalong question: wondering what people are liking instead of the Phillips InnospireGO since it's..." + (show)
@wsbme74

Hi. A tagalong question: wondering what people are liking instead of the Phillips InnospireGO since it's no longer made? And why isn't it?!

Jump to this post

I for one have not found an ideal replacement yet, so am reverting to a portable compressor model, the InnoSpire Go, which has been my go-to for probably close to 10 years.
Philips was having sourcing issues with their parts, and some people experienced leaking from the nebulizer head.
As for finding a hand-held (mesh) replacement, since I must self-pay, my upper limit is $200-250. There is nothing there.
There are cheapies, sold on Amazon, with terrible track records. I do not believe they are meant for 2-3 times a day use over extended time.
There are also $80-150 dollar ones, but none of the heads can be sterilized to the standard needed for those of us at risk for MAC (they are reported to be "self-cleaning" with distilled water, or soaked in vinegar - no boiling.)
There is a $400 one, on the market in the UK, but I cannot find a US source.

Somebody, please find us a new one! I miss the convenience.
Sue

REPLY
1 reply
greentree | @greentree | Apr 15, 2023
In reply to @sueinmn "I for one have not found an ideal replacement yet, so am reverting to a portable..." + (show)
@sueinmn

I for one have not found an ideal replacement yet, so am reverting to a portable compressor model, the InnoSpire Go, which has been my go-to for probably close to 10 years.
Philips was having sourcing issues with their parts, and some people experienced leaking from the nebulizer head.
As for finding a hand-held (mesh) replacement, since I must self-pay, my upper limit is $200-250. There is nothing there.
There are cheapies, sold on Amazon, with terrible track records. I do not believe they are meant for 2-3 times a day use over extended time.
There are also $80-150 dollar ones, but none of the heads can be sterilized to the standard needed for those of us at risk for MAC (they are reported to be "self-cleaning" with distilled water, or soaked in vinegar - no boiling.)
There is a $400 one, on the market in the UK, but I cannot find a US source.

Somebody, please find us a new one! I miss the convenience.
Sue

Jump to this post

Sue you mentioned a standard of sterilization for those at risk for MAC I have gotten different information from different sources How do you clean/sterilize the cups you use, on a daily basis
Thanks
Helene

REPLY
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