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I just started today and will be glad to share my journey with anyone who is currently taking or thinks they will be taking this drug. I am 63 in good health, lean, athletic, etc. I was on Actonel, which didn't really help.
I was as hesitant--for all the obvious reasons-- as everyone else on this site to start the injections, but here we are.
Day 1: I started with 1 click this morning and plan on staying with 1 click for at least a week. I might even do 1 click every other day. I take everyone at their word when they say ramp up slowly. My injection site turned red (very small red zone) and now, late in the afternoon, is still a bit sore. The red is fading. I think I am going to alternate between belly and thigh to give each body part time off. Most people say they don't feel the needle going in. I totally felt it. I hope this helps people out there looking for boots on the ground information.
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I'm confused on all the references to 'one click, two click' stuff as I was put on Tymlos back in Oct. and told 'dial it to 80' period. I've also had some red spot pin prick soreness and def feel the needle going in too...as I think I do it too slow.
Also have had vertigo sporadically and initially had hair loss (about a brush a week) but that's tapered off...
Biggest prob right now is I've ended up w/some neuropathy as in 'tingling toes' and numbness which to me seems like a 'fall risk' as I'm an athlete, 63 as well and don't want to make my circumstances worse! I asked to be switched to Forteo right away as it was a 'gold standard' etc. but insurance wouldn't let me due to 'expense' so I'm stuck on Tymlos...and have adapted. It's a shame when insurance companies control healthcare...doc said I'd have to prove worse 'adverse reactions' for them to switch me over as they need 'substantiation'
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I started Tymlos about 2 weeks ago. A few days ago, I awoke to a swirling room. With great mind over body control, I got myself to a swimming pool for water aerobics. I called my doctor and didn't have to wait long for a work up to see what was going on. The team could find nothing that related to Tymlos, but reported it anyway. I will start Physical Therapy next week for vertigo. All of this is in preparation for my 80th in 6 weeks.