Stage 4 metastasis prostate cancer: Anyone had Lupron shots?

Posted by baxterlee77 @baxterlee77, Mar 27, 2023

Have any of your men used Lupron shots?

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@digger

I’ live in Ohio I go to the Cleveland CLINIC CANCER CENTER I’m a snowbird i switched over in November I will be going home in May after my last injection im scheduled for radiation of the aggressive cancer I would rather get at home I have a great radiation dr at Cleveland I don’t think I can wait to get it then im afraid how much its grown I just hope they know what there doing Sloan Kettering is a great place I heard I’ve thought about Mayo there number one

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I go to Credit Valley Hospital in Mississauga

Excellent oncology team

New 2.9 million MRI that is 10 times better

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@kchris5174

You mentioned “prednisolone”. Did you mean “prednisone”? I ask because I’m on both but the prednisolone is an eye drop. Most people that I know who are on prednisone do have the problem of weight gain because of the stimulated appetite. That includes me.

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On the strip of tablets that I am taking is marked, "Prednisolone Tablets I.P." From Google:

Prednisone is a prodrug, meaning it chemically changes in your body after you swallow it. It then turns into its active form, prednisolone. Prednisone must be converted by liver enzymes to prednisolone before it can work.

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Thanku today he is fatigued from it

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@wellness100

How long were you on ADT?

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I am on Eligard 6 month injections and 160 mg of Xtandi daily. Psa went from 20.8 in November to

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@melcanada

Just back from medical oncologist
Since 40 days radiation in 2018, on and off Zolodex, radiation of L2 in 2021 and back on Zolodex, then Jan 2023 when PSA went from 1.2 to 4.0 to 9.8 I got on Enzalutamide and it dropped to 4.1 in 6 weeks and now to 1.7 in next 4 weeks so its working

Just added XGEVA injections every 3 months to push calcium from blood back into bones, but I must take 1,220 mg of calcium daily

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I was on Xgeva for 2 1/2 months after my last chemo infusion. I developed necrosis of the jaw, as a side effect. A hole in the soft tissue in the bottom of my mouth opened up. I could feel bone with my tongue. Ultimately, the necrotic bone tissue came partially lose and dental surgeon pulled it through the hole. The hole closed up on its own. It was kinda cool in a weird kind of way. No problems now, and, no pain ever in the whole episode. Off the Xgeva. This is a rare side effect by the way. Good idea to watch for signs of it anyway.

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@nishok

I was on Xgeva for 2 1/2 months after my last chemo infusion. I developed necrosis of the jaw, as a side effect. A hole in the soft tissue in the bottom of my mouth opened up. I could feel bone with my tongue. Ultimately, the necrotic bone tissue came partially lose and dental surgeon pulled it through the hole. The hole closed up on its own. It was kinda cool in a weird kind of way. No problems now, and, no pain ever in the whole episode. Off the Xgeva. This is a rare side effect by the way. Good idea to watch for signs of it anyway.

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What was the benefit of going on it in the first place

I have exposed roots canals on bottom I never had pulled so maybe Im at risk

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@nishok

I was on Xgeva for 2 1/2 months after my last chemo infusion. I developed necrosis of the jaw, as a side effect. A hole in the soft tissue in the bottom of my mouth opened up. I could feel bone with my tongue. Ultimately, the necrotic bone tissue came partially lose and dental surgeon pulled it through the hole. The hole closed up on its own. It was kinda cool in a weird kind of way. No problems now, and, no pain ever in the whole episode. Off the Xgeva. This is a rare side effect by the way. Good idea to watch for signs of it anyway.

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Thanku for the info

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@melcanada

What was the benefit of going on it in the first place

I have exposed roots canals on bottom I never had pulled so maybe Im at risk

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My understanding is it was supposed to build up my bone, tissue and bone marrow so I had greater white blood cell production.

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@nishok

My understanding is it was supposed to build up my bone, tissue and bone marrow so I had greater white blood cell production.

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Yes take calcium from the blood and push it into the bones for density

No nothing about white blood cells

One must take 1200 MG calcium daily important

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@samidh

On the strip of tablets that I am taking is marked, "Prednisolone Tablets I.P." From Google:

Prednisone is a prodrug, meaning it chemically changes in your body after you swallow it. It then turns into its active form, prednisolone. Prednisone must be converted by liver enzymes to prednisolone before it can work.

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I never checked to see how they differ; I just knew they were both steroids and the similar names suggests that. Thank you. I take prednisolone in the form of eye drops (AMD, post cataract surgery issues).

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