Body vibrations when falling asleep or waking?

It is so comforting to hear that I’m not the only one experiencing this! I’ve been scouring the Internet using search terms like “internal head vibrations while sleeping.” But I’ve not found anything that sounds like what I’m having besides what you & an few others are describing on this thread! I am a 43 yo female & this began about 18 months ago. It happened once, was very frightening, and then didn’t happen again for several months. I have not received a single COVID vaccination but I had the DELTA variant. I got very sick but was not hospitalized. I have since learned I am Vitamin D deficient but am otherwise healthy. I did receive the antibody infusion which I believe saved my life. I have found things online that make we wonder if this is a Long-COVID symptom but it literally ONLY happens while I’m in sleeping position—either falling asleep, in a very light stage of sleep in the night, or upon waking up. It came back with increased frequency about 4-6 months ago & is now happening most nights & every morning without exception. I saw a sleep specialist to discuss this tremor along with insufficient deep sleep (per my Apple Watch, which I began wearing to look for patterns during these vibrations). Nothing showed as abnormal during the times I noticed the vibrations but they always stop when I come out of that lightest phase of sleep to check the time. Just as you mentioned, I have never once (thankfully) experienced this feeling while being fully awake or even upright. Mine originates in the base of my skull so I start to feel it in my jaw & lips first. Changing head position stops it temporarily. I’m no longer frightened as I seem to be okay when I’m awake but the sleep specialist seemed completely stymied & that didn’t make me feel great. I did an at-home sleep study which showed some signs of minor sleep apnea & snoring (my husband says I don’t). But maybe it’s too quiet to hear & is causing this tremor somehow. He’s ordered me an on-site sleep study for more info. Perhaps something will be found there.

Hello, I am having the same symptoms and would be interested in discussing further. How did your sleep study go? My symptoms also started about two years ago maybe 2 1/2. It’s so hard to get answers and very frustrating.

Hello all. I'm very grateful to follow this thread. I experience vibrations, tremors, twitching, pulsating (not sure what to call it) 7 nights per, 365 days per year for the past year and half. It occurs while I'm sleeping, in the middle of the night and while I'm waking. It all started with getting sick (tested for Covid - was neg) not sure if it was a false negative but I was very sick for about a week. It turned into an extreme case of Vertigo followed by dizziness that last for months - not dizzy like world spinning but dizzy like veering when I walk. About 4 months into this I started experiencing a shaking in my eyes while sleeping. It has since gotten worse and it's constant. Now the vibrations are mostly in my head. Sometimes in my chest and lips. It's been happening for well over a year and now I am experiencing a soreness in my skull during the day. I have had every test and have seen many Drs.
I have been to my primary care Dr., blood work, ENT, audiologist, otolaryngologist, cardiologist, 2 different neurologists, EKG, echocardiogram, MRI, CT scan of the head with contrast, hearing test, GYN, Chiropractor, etc. I feel like part of the problem is all of these tests are being conducted during the day. I'm now looking into a sleep study and my Dr. is going to perform 1 more test - a Venogram (thinking maybe it's the blood vessels in my head).
My ears often feel clogged too. I often feel pain up my neck. Often a mild dizziness. I also clench my teeth at night. Not sure if that's relevant.
Where are people going for this undiagnosed condition? Thanks

Hello all. I'm very grateful to follow this thread. I experience vibrations, tremors, twitching, pulsating (not sure what to call it) 7 nights per, 365 days per year for the past year and half. It occurs while I'm sleeping, in the middle of the night and while I'm waking. It all started with getting sick (tested for Covid - was neg) not sure if it was a false negative but I was very sick for about a week. It turned into an extreme case of Vertigo followed by dizziness that last for months - not dizzy like world spinning but dizzy like veering when I walk. About 4 months into this I started experiencing a shaking in my eyes while sleeping. It has since gotten worse and it's constant. Now the vibrations are mostly in my head. Sometimes in my chest and lips. It's been happening for well over a year and now I am experiencing a soreness in my skull during the day. I have had every test and have seen many Drs.
I have been to my primary care Dr., blood work, ENT, audiologist, otolaryngologist, cardiologist, 2 different neurologists, EKG, echocardiogram, MRI, CT scan of the head with contrast, hearing test, GYN, Chiropractor, etc. I feel like part of the problem is all of these tests are being conducted during the day. I'm now looking into a sleep study and my Dr. is going to perform 1 more test - a Venogram (thinking maybe it's the blood vessels in my head).
My ears often feel clogged too. I often feel pain up my neck. Often a mild dizziness. I also clench my teeth at night. Not sure if that's relevant.
Where are people going for this undiagnosed condition? Thanks

Welcome @medmysteryseekans, It's hard for me to imagine the pain and frustration you have been through the last year and a half and not finding any answers or treatments. I hope you get some answers from your upcoming Venogram and possible sleep study.

@asquires and @novajeff may have experience or information to share.

When is your Venogram scheduled?

Thanks John, the next test is the end of next week. I am a little worried as I feel soreness in my skull now- this is more recent- scared like it could be some sort of fluid.

Hello all. I'm very grateful to follow this thread. I experience vibrations, tremors, twitching, pulsating (not sure what to call it) 7 nights per, 365 days per year for the past year and half. It occurs while I'm sleeping, in the middle of the night and while I'm waking. It all started with getting sick (tested for Covid - was neg) not sure if it was a false negative but I was very sick for about a week. It turned into an extreme case of Vertigo followed by dizziness that last for months - not dizzy like world spinning but dizzy like veering when I walk. About 4 months into this I started experiencing a shaking in my eyes while sleeping. It has since gotten worse and it's constant. Now the vibrations are mostly in my head. Sometimes in my chest and lips. It's been happening for well over a year and now I am experiencing a soreness in my skull during the day. I have had every test and have seen many Drs.
I have been to my primary care Dr., blood work, ENT, audiologist, otolaryngologist, cardiologist, 2 different neurologists, EKG, echocardiogram, MRI, CT scan of the head with contrast, hearing test, GYN, Chiropractor, etc. I feel like part of the problem is all of these tests are being conducted during the day. I'm now looking into a sleep study and my Dr. is going to perform 1 more test - a Venogram (thinking maybe it's the blood vessels in my head).
My ears often feel clogged too. I often feel pain up my neck. Often a mild dizziness. I also clench my teeth at night. Not sure if that's relevant.
Where are people going for this undiagnosed condition? Thanks

Has anyone on this thread seen their sleep tremors disappear? If so, what did you do to stop them (other than stopping Klonopin)? There are many people whose sleep tremors stopped on two Facebook groups, "Internal Vibrations/Sleep Tremors" and "Internal Tremors," but they generally don't know why their symptoms have stopped happening. I am still looking for clues, so please share. The cause of my own sleep tremors is not covid or any of the covid vaccines.

Also, why are the body vibrations or tremors tied uniquely to sleep? We all feel them whenever we are waking up, but then they suddenly stop. My doctors have no idea what this condition is. This is different from other sleep movement disorders. With so many more cases popping up due to covid and vaccine side-effects, maybe doctors will finally start to know what this condition actually is. Has anyone's doctor here actually diagnosed sleep tremors as tied to some other medical condition?