1. < Lung Cancer

New here: Looking for others who have NSCLC and information

Posted by harley123 @harley123, Apr 24, 2022

Hi my name is Tom and I was just diagnosed with NSCLC thay found a large tumor in My right lung besides the shortness of breath and pain in my right shoulder I would never known anything serious was wrong when I went to the doctor about my shoulder that's when thay found the tumor I had all the test PET, MRI, Cat scan, ets. The plan is Immunotherapy but thay needed DNA so in the meantime thay are going to put me on Chemo. If anyone could let me know what to expect iam at a loss and don't know anything about the disease and anything would be a help.
Thank You
Tom

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vlc1234567 | @vlc1234567 | Apr 2, 2023
In reply to @snoekie "Newly diagnosed. NSCLC squamous cell carcinoma Hi all, I am newly diagnosed with NSCLC stage 3...." + (show)
@snoekie

Newly diagnosed. NSCLC squamous cell carcinoma
Hi all,
I am newly diagnosed with NSCLC stage 3. Starting soon with Radio and Chemotherapy treatment for 6 weeks. I am very anxious and have no idea of what to expect. I am from the United Kingdom. I pray for all of you. God bless.

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Well Lisa I hope everything turns out great for you.The best of luck in your treatments

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Mentor
Lisa, Volunteer Mentor | @lls8000 | Apr 3, 2023
In reply to @snoekie "Hi Lisa, I had a chest infection and then sent for an chest xray. Came back..." + (show)
@snoekie

Hi Lisa,
I had a chest infection and then sent for an chest xray. Came back with abnormal results. Right lower lobe. Had a Pet scan and Bronchoscopy. Staging is as follows T3 N2 M0
I am trying to stay very positive. They said that surgery was not an option due to the 2 nymph lodes, hence Radio and Chemo.

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@snoekie keep us posted on how your treatments are going. It’s a scary time, but many people here have been through similar circumstances. Take care.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 4, 2023
In reply to @snoekie "Newly diagnosed. NSCLC squamous cell carcinoma Hi all, I am newly diagnosed with NSCLC stage 3...." + (show)
@snoekie

Newly diagnosed. NSCLC squamous cell carcinoma
Hi all,
I am newly diagnosed with NSCLC stage 3. Starting soon with Radio and Chemotherapy treatment for 6 weeks. I am very anxious and have no idea of what to expect. I am from the United Kingdom. I pray for all of you. God bless.

Jump to this post

Hi @snoekie, I'd like to add my welcome along with @lls8000. She's right. You're not alone. In fact, I moved your message to this existing discussion that @harley123 recently started:
- New here: Looking for others who have NSCLC and information https://connect.mayoclinic.org/discussion/new-to-group-trying-to-find-any-info-with-anyone-going-through-the-sam/

I did this so you can read previous helpful posts and easily connect with other NSCLC-ers like @cindyjk @aksinspringfield @kkckkjm @marcia115 @ta52 @richcolleen @marshall8318 and others.

Snoekie, when will treatment start? Do you know what type of chemotherapy protocol you'll be getting?

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1 reply
snoekie | @snoekie | Apr 5, 2023
In reply to @colleenyoung "Hi @snoekie, I'd like to add my welcome along with @lls8000. She's right. You're not alone...." + (show)
@colleenyoung

Hi @snoekie, I'd like to add my welcome along with @lls8000. She's right. You're not alone. In fact, I moved your message to this existing discussion that @harley123 recently started:
- New here: Looking for others who have NSCLC and information https://connect.mayoclinic.org/discussion/new-to-group-trying-to-find-any-info-with-anyone-going-through-the-sam/

I did this so you can read previous helpful posts and easily connect with other NSCLC-ers like @cindyjk @aksinspringfield @kkckkjm @marcia115 @ta52 @richcolleen @marshall8318 and others.

Snoekie, when will treatment start? Do you know what type of chemotherapy protocol you'll be getting?

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Hi Coleen,
Thank you. I am starting on the 17th of April with Chemotherapy Paclitaxel and Carboplatin every Monday and Radiotherapy everyday for 6 weeks.

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nsclckrasg12v | @nsclckrasg12v | Apr 6, 2023

Hi anyone with early stage NSCLC with Kras G12V?

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1 reply
nsclckrasg12v | @nsclckrasg12v | Apr 11, 2023
In reply to @ta52 "Hi, Tom .... I'm another Tom. I was diagnosed with inoperable Stage IV non-small cell lung..." + (show)
@ta52

Hi, Tom .... I'm another Tom.
I was diagnosed with inoperable Stage IV non-small cell lung cancer in early October 2020 and started immunotherapy (Keytruda) later that same month. During the first course of Keytruda I also had a lighter version of chemo. I had no side effects from either and my results were not typical but I will tell you that within months there was no longer and evidence of disease.
The genetic testing is critical!!! So many of the new therapies are driven by DNA results. Also, have they biopsied yet? That, too, is really important.
last word of advice: you've just been told you have cancer and you want things to start moving at the speed of light but be patient. The tests they are running now are critical to your future treatment and your future treatment is critical to controlling the cancer.

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Hi, if you don’t mind me asking what type of genetic mutation did u have

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1 reply
Tom Anderson | @ta52 | Apr 11, 2023
In reply to @nsclckrasg12v "Hi, if you don’t mind me asking what type of genetic mutation did u have" + (show)
@nsclckrasg12v

Hi, if you don’t mind me asking what type of genetic mutation did u have

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I was KRAS G12D. But from a treatment perspective, my PD-L1 expression was an almost unheard of 100% which meant I went immediately into immunotherapy and was NED within six months..

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1 reply
snoekie | @snoekie | Apr 13, 2023

Hi all,
Anyone started their radio and chemo journey yet? I am starting on Monday and very anxiuos. Has anyone tried the cold capping for hair loss? Did it work?

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2 replies
Mentor
Lisa, Volunteer Mentor | @lls8000 | Apr 14, 2023
In reply to @snoekie "Hi all, Anyone started their radio and chemo journey yet? I am starting on Monday and..." + (show)
@snoekie

Hi all,
Anyone started their radio and chemo journey yet? I am starting on Monday and very anxiuos. Has anyone tried the cold capping for hair loss? Did it work?

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Hi @snoekie, I’ve pasted a link to a previous post where cold capping was discussed, possibly this will be helpful. It sounds like this may take some planning, but it’s worth asking your cancer center about it.
https://connect.mayoclinic.org/comment/718802/

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Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 27, 2023
In reply to @snoekie "Hi all, Anyone started their radio and chemo journey yet? I am starting on Monday and..." + (show)
@snoekie

Hi all,
Anyone started their radio and chemo journey yet? I am starting on Monday and very anxiuos. Has anyone tried the cold capping for hair loss? Did it work?

Jump to this post

@snoekie, how are doing with chemotherapy treatment?

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