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Father has BOOP and Pulmonary Hypertension
Lung Health | Last Active: Apr 25, 2023 | Replies (10)Comment receiving replies
Hi @isorin, in addition to connect with @miloandlisa, I'm also tagging @spudmato @kp5450121 @oakbourne @albuqneece @bridgetamaro @lisapullen who have experience with BOOP, also called Cryptogenic Organizing Pneumonia (COP).
You might also be interested in these related discussions:
– Bronchiolitis Obliterans with Organizing Pneumonia (BOOP) https://connect.mayoclinic.org/discussion/boop-pneumonia/
– Cryptogenic Organized Pneumonia (COP) https://connect.mayoclinic.org/discussion/cop-1/
– Obliterative Bronchiolitis (OB) v. ILD or CLD??? https://connect.mayoclinic.org/discussion/obliterative-bronchiolitis/
Pulmonary Medicine is the department at Mayo Clinic that treats COP. https://www.mayoclinic.org/departments-centers/pulmonary-medicine/home/orc-20397844
Corticosteroids, such as prednisone, are usually the first-line treatment for COP. Has your father been on prednisone? How is he doing?
Replies to "Hi @isorin, in addition to connect with @miloandlisa, I'm also tagging @spudmato @kp5450121 @oakbourne @albuqneece @bridgetamaro..."
Due to various other ailments and risks it is not recommended for him to go on heavy doses of corticosteroids. He has bone issues already and he was told prednisone would potentially make it worse.
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While my treatment for BOOP was and remains prednisone, I also take Bactrin as a infection protection. I was told by my pulmanoligist(?) that there is an alternative if no one with more difficult side effects. It is not cure able. I have it for over 5 years. You pick the best worst choice.
Good luck.