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Cirrhosis of the Liver: What to expect when waiting for a transplant?
Transplants | Last Active: Aug 16, 2023 | Replies (104)Comment receiving replies
Hello, I am new to this site and looking for someone to talk to about my new diagnosis of cirrhosis of the liver. I found out for sure on Feb 13,2023 that it was indeed stage 4 cirrhosis of the liver. I can't tell you how scared I am to hear those words, especially when I don't drink. Unfortunately, I was one of the unlucky ones to get a unrelated alcoholic fatty liver. I had two bariatric surgeries first was the sleeve it was done in 2013 for being overweight and many other health related issues. Then in 2021 I had the gastric bypass (also known as Roux-en-y to help for Gerd.
I am hoping telling my story I can help someone else be able to open up and not be afraid to tell there's. I'm a 56 year old female married for 40 years with 3 grown children 2 girls, and 1 boy with a total of 11 grandchildren who I want to watch grow up and have children of their own one day. I truly hope my liver specialist can make that happen at least for the next 10-20 years. With the grace of the good Lord above he will.
Hope you all have a wonderful rest of your day!
Replies to "Hello, I am new to this site and looking for someone to talk to about my..."
I was diagnosed stage 3 via the fibroscan and had MRI - no tumors found. Did upper endoscopy looking for ascites (sp). None found. I have a genetic disease called alpha 1 antitripsan deficiency that can cause liver and lung problems. If I’m deficient they can do infusions. I thought my life was about over. As it is now, I keep having to put out medically related “fires”. So in that respect I’ve been preoccupied. I have to find another liver doctor. I’m scared to learn what he will tell me. Its very frightening. With so many health issues, I’m not sure I’m gonna come out ahead of it all. I’m feeling my mortality. I’m sorry this isn’t a very helpful post. Just wanted to let you know you are not alone. Mine was found a couple of years ago.
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Welcome, @mstorch82. I moved your message to this existing discussion about stage 4 cirrhosis:
- Cirrhosis of the Liver https://connect.mayoclinic.org/discussion/cirrhosis-of-the-liver-2/
You can click the link to read through previous posts and easily connect with fellow members like @tamaralynnjordan @athenalee @jeanne5009 @rose999 @contentandwell @maw90455 @mylifebe4u and @jazzmanfla among others.
I can imagine that hearing stage 4 scares you to death. You're not alone. This is all so new to you. You must have many questions you'd like to ask. What is on your mind today?