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Waldenström's Macroglobulinemia

Blood Cancers & Disorders | Last Active: May 25 10:40pm | Replies (135)
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@belcar45

Thankyou for your reply greatly appreciated, when I tell them anything I’m having wrong with me they think I’m crazy and literally blow it off and send me on my way after chemo finished November 21 I am still short of breath badly and my stomach hurts and swollen and pain they say I’m fine and don’t care to hear it and there not putting my results up to my health records for me to view anymore

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Replies to "Thankyou for your reply greatly appreciated, when I tell them anything I’m having wrong with me..."
ejrquast | @ejrquast | Apr 11, 2023

I am sorry to hear that you are not able to view your recent test results on line. It is helpful for us to be aware of our continued results.
I personally experienced being “short of breath.” For me, that improved as I gradually improved my physical exercise. I understand feeling exhausted and short of breath, but started with slow and short walks and increased slowly. It took months to experience improvement.
May I ask if you are seeing a WM specialist? If not, I can direct you to a new program with the IWMF for assistance with second opinion WM specialists.

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