Hello,
I am 53, male. Occupation is a Chef. After 1 year of MGUS I was diagnosed 4/4/2023 with low risk Smoldering Myeloma, marrow at 10%. I am scared. Not much scares me in life but I must say this has got me. I found out just over a year ago after a freak tibia fracture and trying to figure out how it happened. Ended up getting a dexa scan after my labs showing protein etc. My bones showed thinning so that led to more labs and then a surprise call to schedule a bone marrow biopsy. Well, now here I am after another biopsy and labs with Smoldering Myeloma and am told to watch and wait. Oncologist said I have 25% chance it will progress to MM in the next 2 years. I’m going to Abbott Hospital Piper Cancer Institute. I can’t say I’m unhappy but wonder if I should get another opinion or switch to the Mayo? I try not to freak out but it’s hard. I’m used to solving problems and I can’t fix this. How long have some of you been in the “smoldering” stage? Are any of you doing some of the Smoldering Myeloma trials I see on here and if so what are the results? Watch and wait seems crazy to me but I’ve been told it could not progress for years why treat it if you don’t need too? I wish everyone the best and appreciate your input. God Bless.