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Small Fiber Neuropathy discouraged
I had minimal health issues until the fall of 2019. My general practioner dc'd a medication cold turkey. This caused small fiber neuropathy. It took two years to diagnose and treat. I spent two years in my husbands arms screaming and crying. In February of 2021 my neurologist placed me on 40 mg of prednisone. I reacted poorly, without pain relief. He was ruling out poly rheumatatica. In June the dictor removed Gabapentin from my allergy list . The nurse stated I would not have the same response. I did. It was hell. By this time the neurologist was uncomfortable taporing me off of prednisone. I have been taporing for slmost a year. The tapor is hell. Im currently on 6 mg. I am currently being treated for pain. The prednisone tapor is suppose to last until Dec. I lost almost everything in the last 3 years. I keep on trying. I wont stop trying to feel better.
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I don't tolerate medicine so what can they do ? I live in pain and pacing. It is my life and prison
I don't tolerate medicine. They give up
No medication tolerance. I'm a throw away.
Bad day. All I have done is pace and been in pain. You take care
Maybe you could discuss some of the complementary or alternative treatments listed on the Foundation for Peripheral Neuropathy site with your doctors or care team to see if something might provide some relief?
--- Foundation for Peripheral Neuropathy - Complementary and Alternative Treatments:
https://www.foundationforpn.org/wp-content/uploads/2020/08/Complementary-and-Alternative-Treatments-Revised-2020-final.-1.pdf
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2 ReactionsDoctors are very busy. 15-20 minutes. They talk I listen. They are wonderful doctors. Just 15 minutes doesn't cut it. I have tried. I hurt too much to try harder. I think I have tried every vitamin and coercive out there. Tens units, compression hose, chiropractic and massage. Nothing helps. They are goid doctors. Overworked and I'm a throw away. What can they do? There is nothing for akathisia. And to boot I have high adrenaline, with no connection to my endocrine system. Throw away. Dead ends. Sorry there isn't much we can do for you.
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1 ReactionDoctors are very busy. 15-20 minutes. They talk I listen. They are wonderful doctors. Just 15 minutes doesn't cut it. I have tried. I hurt too much to try harder. I think I have tried every vitamin and coercive out there. Tens units, compression hose, chiropractic and massage. Nothing helps. They are goid doctors. Overworked and I'm a throw away. What can they do? There is nothing for akathisia. And to boot I have high adrenaline, with no connection to my endocrine system. Throw away. Dead ends. Sorry there isn't much we can do for you. I heed a miracle and that for sure isn't going to happen
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1 ReactionI guess I should remind you my pain is in my thighs and hands
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1 ReactionMy doctor discussed Mayo Clinic. She can try a referral but I doubt they would want a "throw away" nobody does
Have you heard about the Mayo Clinic Pain Rehab Center? There is a discussion here that you might want to read through to see if it is something that might help.
--- Mayo Clinic Pain Rehab Center (PRC) - What’s Your Experience?:
https://connect.mayoclinic.org/discussion/mayo-clinic-prc-whats-your-experience/