Small Fiber Neuropathy discouraged

Have you heard about the Mayo Clinic Pain Rehab Center? There is a discussion here that you might want to read through to see if it is something that might help.

--- Mayo Clinic Pain Rehab Center (PRC) - What’s Your Experience?:
https://connect.mayoclinic.org/discussion/mayo-clinic-prc-whats-your-experience/

Sounds fantastic. But I would have to be seen at Mayo neurologist and have the money. Sorry spent last night crying. Doctor did call me back nothing can be done.. I sit in my chair and have pain. I used to be a person with endless hope. That's gone

Thanks for your kindness. But Mayo Clinic us beyond my reach. They would give up too.

My doctor thinks the neurology clinic is to hard to get into see someone. Even though my neuropathy stumped doctors. Caused by a sudden cessation of klonopin. Multiple frightening medication reactions. I'm on 3 medications and no doctor wants to prescribe anything. Yet my abilities are steadily decreasing. Pots I drink water and take salt, but compression stocking cause severe lower leg pain. And that's not even where I have pain. Akathisia never went away. She thinks maybe there is a small chance I could be reviewed for akathisia. I'm a throw away person. Even if I was seen at Mayo, they would give up too. I coined the phrase, Throw away patient" after I heard a nurse say that my file was hopeless. I was a Throw away

@graysea, my heart goes out to you. It must be awful to feel like you are a throw away. It seems to have left you wihout hope. Feeling hopeless really is rock bottom, isn't it?

The doctors and nurses gave up. Many of my friends and family. My closest friends and family have not given up because they love me, not because they have hope. I don't think there is a doctor out there that would take me as a patient. Who would take me? It was a nurse that called me a "throw away " I guess I have believed her ever since

The doctors and nurses gave up. Many of my friends and family. My closest friends and family have not given up because they love me, not because they have hope. I don't think there is a doctor out there that would take me as a patient. Who would take me? It was a nurse that called me a "throw away " I guess I have believed her ever since

That’s cruel that one nurse’s comment defines you. That doesn’t seem just.

Thinking of you today, @graysea. Your username makes me think of the foggy mornings on the East coast. It conjurs a blue gray color that is one of my favorite calming colors.

What a kind thing for you to say. I hope you had a good spring day.
I remember beautiful spring days. I stayed in my chair and watched the world. Now laugh at this; I have about 40 coping mechanisms. But pain always wins. I sat in my chair remembering the past. Pain and nausea keep me company. I didn't reach out, pain was with me all day. It always is, everyday is the same. Everyday is the same