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Craniotomy in 9 days

Posted by jhbl @jhbl, Aug 13, 2022

In September 2021, I went for a routine MRI for my MS and a new 7mm tentorial meningioma was discovered. This was at the Mayo Rochester. That neurologist said he’d see me in 2 years. I was already having headaches along with increased fatigue and nausea. I went for a second opinion with a neurosurgeon; since the MRI in September 2021 I’ve had 2 subsequent scans which have shown growth and I now have mass effect so in 9 days I’m having a left occipital craniotomy. I know there are so many variables with different outcomes but I’d like to hear from others that have gone through this surgery and recovery.

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rsfcowgirl | @rsfcowgirl | Apr 6, 2023
In reply to @craniotomy "I had a craniotomy for an aneurysm 6 weeks ago (mid February) and am recovering. I..." + (show)
@craniotomy

I had a craniotomy for an aneurysm 6 weeks ago (mid February) and am recovering. I was so scared of the surgery. I’m finding post op recovery is slower than I thought. How are you doing?

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Hi! So glad to hear from you. Yes, I can relate to the fear experience. Just about everyone who participates here can relate to that feeling too. You sound like you're doing well in many ways tho not recovering as fast as you'd like. I'm glad for the success of the surgery itself and pray you get a special dose of patience to carry you through the rest of the recovery process. I have not had brain surgery to relate to your experience personally but have had other medical experiences that required an extended recovery. So I do understand the range of impact of loss of full function, easy fatigue etc. I believe this forum will be a wonderful bridge for you. Persevere. My best wishes and prayers for you

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rsfcowgirl | @rsfcowgirl | Apr 6, 2023
In reply to @courtneyizquierdo "I understand your anxiety. (Im in the wait and watch phase, with a 2.8cm cavernous sinus..." + (show)
@courtneyizquierdo

I understand your anxiety. (Im in the wait and watch phase, with a 2.8cm cavernous sinus meningioma…diagnosed last august)
Am wishing you the very best outcome and you are wrapped around in prayers.
Please try to update us here.
You are in my thoughts and prayers.

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I'll add you to my prayers too.

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lynda1992 | @lynda1992 | Apr 7, 2023
In reply to @jhbl "I love hearing the success stories! Thank you 😊. I hope mine goes as smoothly as..." + (show)
@jhbl

I love hearing the success stories! Thank you 😊. I hope mine goes as smoothly as yours. I’m an eternal pessimist and my mind is reeling, thinking about each and every possible complication. I didn’t think about the DMV…

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Here's a success story! I had a craniotomy over 30 years ago to remove an intraventricular pilocytic astrocytoma. Still going strong!! Hope you're doing the same.

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mockinbrd | @mockinbrd | Apr 9, 2023

Hello
I had a craniotomy four years ago and doing darn okay. Yes, it is scary but please keep in mind you will improve as you heal. Post-op I had deficits that went away over time. So it is very normal to be scared but you will heal and you will get better. Best wishes and I think at Mayo’s you are in very good hands.

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