2 years ago I had Numbness in both Feet. I had Treatment Called Sansex that sent electrical current to Nerves in legs. Been 2 years Numbness still gone. This was covered by Medicare but not anymore. It was 24 sessions. Also helped my legs.
High Charlie thank you for sharing this information but unfortunately I am on Medicare and can not afford what that would cost me if it’s not covered
Have a wonderful day 😀
Good evening @charlie807, Welcome to Connect. It appears that you are coming to this group with lots of experiences to share. And that's what we try to do well here........share! You have a great start and I am anxious to learn more about your condition.
However, right now, the message at the top of my list for you is about MFR, myofascial release therapy. There is simply no way I could hold on to exist without my MFR sessions every week. I was diagnosed with small fiber neuropathy (SFN) about 9 or 10 years ago. The journey can be a bit rugged. I will share a Connect link with you as an introduction. And by the way.....did @johnbishop tell you why he doesn't use MFR. That is because he has no pain with his form of SFN (small fiber neuropathy).
@jenniferhunter will undoubtedly be looking to greet you. You can surprise her by having already visited her page in Connect about MFR. Since it was posted, a lot of folks have added to her comments. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
When you say that your foot pain is off the charts....I actually know what you mean. In addition to the pain, the bottoms of my feet feel like leather. This started with a few toes on one foot. And, eventually the other foot. Now it seems like the pain in each foot is in a race to get to my knee. Actually, at this point, I have to have the MFR therapists work on my feet twice a week just so I can drive myself to therapy.
Please let me have some feedback after you have had a chance to absorb our Connect welcomes.
May you be free of suffering and the causes of suffering.
Chris
High Charlie thank you for sharing this information but unfortunately I am on Medicare and can not afford what that would cost me if it’s not covered
Have a wonderful day 😀
Good evening @jlf2.....I was searching for a particular post and I just saw yours about Medicare.
I just might have a couple of suggestions for you. Last year I had a "heck" of a time getting coverage for a new product for neuropathic itch called Dupixent. The first thing I discovered was that this injection product was not even listed on the Medicare Formulary. I had to request a special exception just to have it placed on the Formulary "momentarily". After that was corrected, I found that the copay was way out of my monetary league.
This "itch" had been a major cause of my most difficult and fearful days. I spent time in the ER and my dermatologist even came in from her vacation to tell me to stay out of the ER and Urgent Care because they wouldn't know how to help me. She ordered a topical medication at least for my face which was inflamed and itching. She had already submitted the prescription directly to the company for approval and I was ready to go.
I happen to have a daughter who has spent 30 years working with patients in a dental surgery center. She took over the search for the copay and lo and behold she got it. I don't know all the details but I suspect there are some issues relative to those of us over the age of 60. Pharmaceutical companies need to qualify for additional research and development funding before the current products face the creation of generic copies with much lower prices.
So.....the medication was temporarily placed on the formulary and I was approved for the copay support. Whew....it took a year. The medication worked from the first time I tried it and has given me another chance at living an itch-free and therefore pleasant life. You may be able to find a way to fund your prescription by digging a little deeper.
May you be free of suffering and the causes of suffering.
Chris
@mitfit, Here's an older article from 2010 that is a possible connection.
"The causes of Baxter's neuropathy include altered foot biomechanics such as flatfoot, plantar calcaneal enthesophytes, and plantar fasciitis."
--- Bilateral Baxter's neuropathy secondary to plantar fasciitis: https://pubmed.ncbi.nlm.nih.gov/20357723/
Hi my name is Jerrilyn and I have non disabilities neuropathy and am in a lot of pain sometimes in my legs and feet I’m on gabapentin 600mg 2x daily sometimes it helps and sometimes it doesn’t I would like to know what other are doing to help with the pain if you would like to share I’m interested ❤️🌼
Hello I have neuropathy in my feet and I started out on gabapentin which didn't really work, so my doctor put me on lyrica which does help
Hope this helps.
Randy
I went to a chiropractor,turns out he in peddling LED red light and some pills for a little over $4,000 You can google led for for nephropathy.most places talk about red led. One place mention blue. Some chiropractors are selling acupuncture. I have never heard sauna . All are vague about results. I regret that I didn't keep a list of web-sights that I visited.
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I too had Rx with Chiropractor for $6874, It was red light, pills, spine stretching. decompression, electromagnetic Therapy, vibration therapy, Brain Body oxygen therapy. A waste of money.
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High Charlie thank you for sharing this information but unfortunately I am on Medicare and can not afford what that would cost me if it’s not covered
Have a wonderful day 😀
That would be me. Our family has hereditary peripheral neuropathy, no diabetes.
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2 ReactionsI'm going to ask my pain doctors about MFR is that correct. I keep going and keep trying all kinds of stuff.
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4 ReactionsI just had blood work done last week for diabetes and it came back good. Still in a lot of pain when I go to bed.
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1 ReactionGood evening @jlf2.....I was searching for a particular post and I just saw yours about Medicare.
I just might have a couple of suggestions for you. Last year I had a "heck" of a time getting coverage for a new product for neuropathic itch called Dupixent. The first thing I discovered was that this injection product was not even listed on the Medicare Formulary. I had to request a special exception just to have it placed on the Formulary "momentarily". After that was corrected, I found that the copay was way out of my monetary league.
This "itch" had been a major cause of my most difficult and fearful days. I spent time in the ER and my dermatologist even came in from her vacation to tell me to stay out of the ER and Urgent Care because they wouldn't know how to help me. She ordered a topical medication at least for my face which was inflamed and itching. She had already submitted the prescription directly to the company for approval and I was ready to go.
I happen to have a daughter who has spent 30 years working with patients in a dental surgery center. She took over the search for the copay and lo and behold she got it. I don't know all the details but I suspect there are some issues relative to those of us over the age of 60. Pharmaceutical companies need to qualify for additional research and development funding before the current products face the creation of generic copies with much lower prices.
So.....the medication was temporarily placed on the formulary and I was approved for the copay support. Whew....it took a year. The medication worked from the first time I tried it and has given me another chance at living an itch-free and therefore pleasant life. You may be able to find a way to fund your prescription by digging a little deeper.
May you be free of suffering and the causes of suffering.
Chris
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7 ReactionsI have been diagnosed with plantar fasciitis in the feet but I do wonder if it has something to do with the peripheral neuropathy.
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2 Reactions@mitfit, Here's an older article from 2010 that is a possible connection.
"The causes of Baxter's neuropathy include altered foot biomechanics such as flatfoot, plantar calcaneal enthesophytes, and plantar fasciitis."
--- Bilateral Baxter's neuropathy secondary to plantar fasciitis: https://pubmed.ncbi.nlm.nih.gov/20357723/
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2 ReactionsJohn,
Thank you. This is so interesting. I will investigate.
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1 ReactionHello I have neuropathy in my feet and I started out on gabapentin which didn't really work, so my doctor put me on lyrica which does help
Hope this helps.
Randy
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1 ReactionI too had Rx with Chiropractor for $6874, It was red light, pills, spine stretching. decompression, electromagnetic Therapy, vibration therapy, Brain Body oxygen therapy. A waste of money.
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3 Reactions