Looking to connect with people who have non-diabetic neuropathy

High Charlie thank you for sharing this information but unfortunately I am on Medicare and can not afford what that would cost me if it’s not covered
Have a wonderful day 😀

That would be me. Our family has hereditary peripheral neuropathy, no diabetes.

I'm going to ask my pain doctors about MFR is that correct. I keep going and keep trying all kinds of stuff.

I just had blood work done last week for diabetes and it came back good. Still in a lot of pain when I go to bed.

Good evening @jlf2.....I was searching for a particular post and I just saw yours about Medicare.
I just might have a couple of suggestions for you. Last year I had a "heck" of a time getting coverage for a new product for neuropathic itch called Dupixent. The first thing I discovered was that this injection product was not even listed on the Medicare Formulary. I had to request a special exception just to have it placed on the Formulary "momentarily". After that was corrected, I found that the copay was way out of my monetary league.

This "itch" had been a major cause of my most difficult and fearful days. I spent time in the ER and my dermatologist even came in from her vacation to tell me to stay out of the ER and Urgent Care because they wouldn't know how to help me. She ordered a topical medication at least for my face which was inflamed and itching. She had already submitted the prescription directly to the company for approval and I was ready to go.

I happen to have a daughter who has spent 30 years working with patients in a dental surgery center. She took over the search for the copay and lo and behold she got it. I don't know all the details but I suspect there are some issues relative to those of us over the age of 60. Pharmaceutical companies need to qualify for additional research and development funding before the current products face the creation of generic copies with much lower prices.

So.....the medication was temporarily placed on the formulary and I was approved for the copay support. Whew....it took a year. The medication worked from the first time I tried it and has given me another chance at living an itch-free and therefore pleasant life. You may be able to find a way to fund your prescription by digging a little deeper.

May you be free of suffering and the causes of suffering.
Chris

I have been diagnosed with plantar fasciitis in the feet but I do wonder if it has something to do with the peripheral neuropathy.

@mitfit, Here's an older article from 2010 that is a possible connection.

"The causes of Baxter's neuropathy include altered foot biomechanics such as flatfoot, plantar calcaneal enthesophytes, and plantar fasciitis."
--- Bilateral Baxter's neuropathy secondary to plantar fasciitis: https://pubmed.ncbi.nlm.nih.gov/20357723/

John,

Thank you. This is so interesting. I will investigate.

Hello I have neuropathy in my feet and I started out on gabapentin which didn't really work, so my doctor put me on lyrica which does help
Hope this helps.
Randy

I too had Rx with Chiropractor for $6874, It was red light, pills, spine stretching. decompression, electromagnetic Therapy, vibration therapy, Brain Body oxygen therapy. A waste of money.