← Return to Does anyone have neuropathy related to MGUS?

Discussion

Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

Comment receiving replies
@circawdm

Hi Agatha,

I am so happy you are asymptomatic now! It would be indeed rare for someone with MGUS related PN to have the symptoms to be so mild that without intervention and/or lifestyle changes over time, you do not notice them or that they have not gotten worse. You did not say what your EMG or nerve conduction tests revealed, but whatever they said, I am happy you are one of few people I have ever read about or known with MGUS-caused neuropathy who, over a long number of years had their symptoms stay the same or where the symptoms actually dissipated such as they were barely noticeable.

There are always exceptions to the rule and everyone's body is different, but congratulations!

Jump to this post


Replies to "Hi Agatha, I am so happy you are asymptomatic now! It would be indeed rare for..."

@circawdm I was originally being tested for MS and all tests were either negative or inconclusive. The numbness (PN) has progressed from 2 toes to 3 and more of my cheek is involved, but overall it is tolerable and I guess after this long, I am just used to it.

Thanks for your reply.