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It’s encouraging to hear all is going well with your MGRS diagnosis. I had not seen that acronym before. I am being treated with CyBorD therapy for Kappa Light Chain Deposition Disease that is adversely affecting my kidneys, CKD Stage 3B. I started the therapy 6 weeks ago and have had consultation about stem cell harvesting and replacement. Please continue to post your progress. How did you feel during the harvesting process? Has your kidney function improved?
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How are you doing, I got home and ended up with a blood clot in my neck from port. I am now on blood thinners and back on my chemo weekly treatments. I have 5 more treatments to go and so ready to be done with them.
I am wondering how they diagnosed your LCDD.
I have high Kappa Light Chain 82.7 and Ratio is 5.76.
My kidney function have dropped significantly in last 6 months. Now stage 3B. I am worried sick about my Kidneys.
My kidney function improved with treatment and has stayed stable. My sct collection went really well. Please stay in touch, there aren't many of us to converse with.
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My kidney function has improved. The collection process was not bad, the worst was the port in my neck. My chemo is dex (steriod), valcad, darzalex and cytoxin once a week for 6 months. I have 2 months to go.