Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Posted by robinholly @robinholly, Feb 13, 2022

Has anyone found some help and explanation for their neurological symptoms? Symptoms like tremors, dizziness, difficulty walking, tingling in legs and back, muscles twitches in legs, hand tremors, cognitive dysfunction, ringing in ears, pain and burning in toes and feet. I have these symptoms and more. I have been through MRI of brain and full spine, peripheral nerve testing, muscle function and short fiber nerve tests all in the normal range despite the symptoms. I have been on 900mg gabapentin daily with little improvement, then things got much worse after getting the booster last month. Would love to hear from some that have found help and explanation.

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@bgoldb428

Hi! So glad I found you. I am helping my friend with similar symptoms. She wants to know if you have to get out of the shower when you have these attacks. She does. Also, she wants to know how long these vibrational attacks have lasted. Hers last a long time.

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I have to tell you that since summer of 21 that I have had the vibration 24/7, so it seems like permanent damage to me.

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@bgoldb428

Hi! So glad I found you. I am helping my friend with similar symptoms. She wants to know if you have to get out of the shower when you have these attacks. She does. Also, she wants to know how long these vibrational attacks have lasted. Hers last a long time.

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For myself, the vibration never goes away, sometimes gets even stronger although always internal. I have a stool in the shower I sit on as I get tired. I know the vibration makes sleep harder, so I do nap if I can. Anymore, I just try to get through each day as I learn my limitations. Prayers for your friend for strength and healing.

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@felicia2

Right! I have also avoided Covid booster! My impaired immune system from Arthritis seems to be responsible!
Should I check out Paxil? Primary doc wants me to return to Neurologist. But the trip to him seems like a painful wasted trip! 😭🙏

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Did you try Paxil? Any Help for reactive Immune system? My Dr. only suggests Norco! ???😳

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@felicia2

Right! I have also avoided Covid booster! My impaired immune system from Arthritis seems to be responsible!
Should I check out Paxil? Primary doc wants me to return to Neurologist. But the trip to him seems like a painful wasted trip! 😭🙏

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Did you try Paxil? Any Help for reactive Immune system? My Dr. only suggests Norco! ???😳
Any suggestions??

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@frouke

I had covid last November and was given Paxlovid for 5 days…it really helped but I rebounded because the Paxlovid wore off. I also had severe night sweating and later on it went to days too…what troubles me most is that I get palpitations with the sweating.. I’m wearing a Holter to monitor my heart rhythm. I have a friend who is going through hell with long covid and she is now a test subject for studying the effects of covid..what I have learned is that they have very little info on what covid can do to us on a long term basis..we’re dealing with a virus that is new to our lives so the doctors are often at a loss of what to do with us. I wish to give you more inspirational feedback, at least I can say that I know lots of people who got better with time so don’t give up on hope for better days, amen.

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Fellow patients: See if your symptoms match, most interested to hear from youl
Night sweats, skin burning entire head, tops of shoulders, forearms, and shins (heat was painful), burning esophagus when walking, blurry vision. All the doctors have looked everywhere except for LongCovid, and there is no answer. Is there any medical center/facility where one can get advanced treatment, including use of proven prescription drugs that facilitate healing??? Thank you in advance, all.

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Hi Mark3240, it’s becoming more and more a very scary situation, we are sharing with each other how we feel, what we have done for help, testing we’ve gone through not to mention the meds we have been prescribed to help us. At the end of the day we are all confused and scared trying to make sense of it all…I must confess that I’m afraid open the door any further as to what the heck is going on, I truly don’t know if I can cope with more realities, I’ve tried to adjust to the “new normal “, frankly they can have it, you start to mistrust everyone and everything. I know someone who is in a test group for long covid so maybe there are more of them, you can ask the doctor about it. I can tell you on a more positive note I feel a lot better now since I reached out to connect with other people who probably have more sound advice and helpful tips to get me through, amen.

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@frouke

Hi Mark3240, it’s becoming more and more a very scary situation, we are sharing with each other how we feel, what we have done for help, testing we’ve gone through not to mention the meds we have been prescribed to help us. At the end of the day we are all confused and scared trying to make sense of it all…I must confess that I’m afraid open the door any further as to what the heck is going on, I truly don’t know if I can cope with more realities, I’ve tried to adjust to the “new normal “, frankly they can have it, you start to mistrust everyone and everything. I know someone who is in a test group for long covid so maybe there are more of them, you can ask the doctor about it. I can tell you on a more positive note I feel a lot better now since I reached out to connect with other people who probably have more sound advice and helpful tips to get me through, amen.

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Thank you very much for your experience. It is like dancing in a house of mirrors. What's right, what helps, who knows the Long Covid treatment process best, etc. Thanks again.

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I had the same issues. There is not a lot of testing available in the US, but Dr. Jordan Vaughn at Medhelp 280 in Birmingham Alabama finally helped me. All of my regular tests came back normal too. They said I had MCAS and developed microclots as a result of an allergy to the COVID vaccine. It definitely made things way worse. +1 205-408-1231 is the office number.

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This just was posted on the internet: https://news.yahoo.com/study-parts-covid-19-may-212827698.html. Whether this viral life form is remaining in the brain or G.I. tract...it is reeking havoc. Our whole biological system is interrelated. The stupidity of the AMA is to create distinctions that do not exist. -namaskaram

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@vonpinnon

Hello. My 12 year old had COVID Pneumonia in September. Since then she has what she calls “zingers”-shooting nerve pains. Some bring her to tears. She also has some internal vibrations. We have tried 2 rounds of steroids and now just starting gabapentin. I’d love to hear from others (like above) that have nerve issues.

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Yes! I had COVID November 2021 with double pneumonia in hospital for 4 days, missed almost a full month of work. My systems started in the hospital with calf swelling, major fullness/pressure I brought it up and they told me it was from all the fluids they were giving me. After I was sent home it continued, I thought it might go away after a few days, it did not. Every follow-up doctor visit I kept asking about it. I had so much discomfort in my legs. They just told me it was from the inflammation. I then started to get sharp stabbing pains in my legs all over, it would take my breath away sometimes. Then I got throbbing, All this continues today, everyday. My feet will turn a reddish/purple and my veins will enlarge, this is when the throbbing is at its worse. I have weakness in my legs from the numbness that I have 24/7. Doctors just say, they don't know all the effects of long-covid. I cant seem to find anyone no help.

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