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After Hep C Treatment

Infectious Diseases | Last Active: Jan 2, 2023 | Replies (170)

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@sueleerock

No, that sounds awful. On any given day, I experience new/odd things happening to my body and I assume it is from sjorgren's. Did you mention these symptoms to your doctor yet? I know that sjorgren's has many health issues associated with it.

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Replies to "No, that sounds awful. On any given day, I experience new/odd things happening to my body..."

@sueleerock Yes, I have told multiple doctors those symptoms along with other symptoms. The hematologist I was seeing in Boston used to refer to me as "the mystery patient". Three suspected diagnoses I've been tested for based on my blood work are leukemia, polycythemia vera and pheochromocytoma or paraganglioma. Here are a couple of pics of the flushing that I get. Comes on with stress. Also happens when I get hot, which is often. 🙁