Living with Neuropathy - Welcome to the group

@lorrainehackett
@pnu
Both Gabapentin and Lyrica can take up to a month or so to be fully effective.

The only way I know to decrease progression is to repair what caused the Neuropathy.

Here is a link to The Foundation for Peripheral Neuropathy.
https://www.foundationforpn.org/
Jake

Hi, my name is John, I am a 64 year old otherwise healthy male. I was diagnosed with idiopathic, small fiber neuropathy. The diagnosis was confirmed by a skin biopsy. My symptoms are numbness and tingling on the bottom of my feet, muscle twitching in my lower legs, slight numbness in my fingertips and numbness and tingling on the tip of my tongue which has slightly altered my sense of taste. I also have urge incontinence. I believe the SFN was brought on by an environmental exposure. I was exposed to a high concentration of carbon dioxide and carbon monoxide from a temporary natural gas heater on a construction site. I am curious if anyone else has neuropathy from this type of environmental exposure.

adejuliannie just joined have Neuropathy because of Disc in Back collapsed on a Nerve. Take 150mg of Pregabalin twice a day. Two years ago had a Treatment Sansex covered by Medicare that helped Tremendously before had no feelings in both Feet it solved that problem an Tingeling. Medicare has since stopped paying for it.

I am on 1200 mg gabapentin 3 times a day with 50 mg of amitriptyline at bedtime.

Hello @lorrainehackett, and welcome to Mayo Clinic Connect. I wanted to bring you into a welcome discussion for members who have neuropathy, so you will notice I have moved your post here:
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

I see that @jakedduck1 and @pnu have joined you already, so I hope you might be able to explore the information Jake sent for you!

Has your neurologist recommended any changes for you at this time?

Thank you. Have Msy appointment at Mayo in Rochester MN to see if the can identify causr.

Hello @pinkton, and welcome to Mayo Clinic Connect. I wanted to connect you with others who understand neuropathy, so you will notice I have moved your post here:
- Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/

Members such as @artscaping, @crissy123 @dbeshears1, and @sullivan3401 have all joined and responded to you.

Have you heard of the benefits of lymphatic massage/drainage for neuropathy?

Was on Cymbalta and my lady two Neurologist s moved or retired after one or Teo years. New Neurologist started m e on Gabapentin and titering me up since symptoms worsened.

I will check out PN Foundation.

Have you tried exercise stretch bands? Their inexpensive and can help maintain muscle tone…David

I have neuropathy due to a spinal cord injury. Gabapentin has been brought up. I was prescribed it years ago at Bethesda Naval Hosp because of TBI. It worked for the pain, but two weeks later I went cross eyed. Was removed from it and 30+ days later regained full sight. Watch out for reactions.