I think it rather odd that during treatment my legs hurt all the time, and the hurting has not gone away. My left leg had a hugh buildup of fluid, and it was twice the size of my right.leg. The doctor had no idea why that happened.

@sueleerock Awe, I'm really sorry to hear that you are in so much pain today. I 100% understand the irritability that comes along with the pain. As does anyone who has ever been around me when I am having one of those extreme pain days lol. It's awful and I wish I could help you. You're a strong woman obviously. You have been fighting a very hard battle for a long time now, and none of us signed up for our treatments with the proper/truthful information about the medication(s) we would be taking. This truly infuriates me. It bothers me so much more to know that so many others are also suffering the long term side effects/chronic illnesses. It's not right. Something has to be done. I'm grateful to have found this group and to have communicated with you and others. Sometimes it's comforting to know you aren't alone, even though we would never wish this nightmare upon anyone else. The support is a good thing and can help in so many ways in and of itself. I hope your pain eases up for you real soon and you're able to feel more comfortable. Sending hugs from afar!