Hello Rosemary
I am trying to catch up this was sent to my spam. I had non-alcoholic steatohepatitis (NASH) with a trans jugular intrahepatic portosystemic shunt (TIPS) and an inferior vena cava (IVC) filter procedures done at a different transplant center. There I was informed after the (IVC) procedure that their transplant committee voted not list me with United Network for Organ Sharing (UNOS) for liver transplant because I was too anxious and depressed. I was told in a year to call back and I could possibly be considered for revaluation then they walked out of the room not to be heard from again. This infuriated my gastroenterologist in Tallahassee FL who had diagnosed the (NASH) in 1992. He called Mayo Jax and arranged an appointment for me at the Mayo Clinic Liver Transplant Program. I was accepted into program 2018 and transplanted at Mayo Jax 3 year ago Valentine’s Day 2020. Covid started so all support groups stopped my husband was lucky a Mayo social worker took him out of my ICU room to the Second Chance Support Group of Jacksonville FL meeting for pre and post liver and kidney transplants at Mayo clinic. Mayo after closing group meetings started the zoom meeting every Tuesday where I have received a lot of support and help from members in the group. I would like to try and give back helping others from my journey of having no hope new hope not on the (UNOS) list informed when admitted into Mayo Hospital Feb. 7th by my clinic surgeon I would not go home becoming listed and transplanted within a week by the grace of God. Gerry said something about this group last week during the zoom meeting so we thought we would give it a try.
Paula