← Return to Kidney Transplant: Does your creatinine bounce around?
DiscussionKidney Transplant: Does your creatinine bounce around?
Transplants | Last Active: May 27, 2023 | Replies (68)Comment receiving replies
Replies to "sorry... forgot to mention... it was a kidney tranplant. thanks."
Hello mariags and welcome to Mayo Connect. I'm so happy that your son was able to receive a kidney transplant and so very kind of his father to donate !!! I am unfamiliar with several of the drugs that you mentioned besides myfortic and tacrolimus. His eGFR sounds good and it did take a while for my creatinine to level out after my living donor transplant 6 months ago. I feel very fortunate to have a wonderful transplant team that I work with via the portal. Without knowing your sons background I would encourage you/your son to reach out to your transplant team. They are a wealth of information.
For now I continue to mask up if I am in a crowded place because of the drugs that we take. Please keep us posted on his progress !!!
I had a kidney transplant June 2019 at Rochester Minnesota, after only 6 months of being on the UNOS list. I’m thankfully never went on dialysis.
Yes my creatinine jumps around but what I have learned is the importance drinking water and how it effects my number. I will admit I can do better as I see through numbers.
Hi @mariags 😊
It is a pleasure to meet you!
I am approaching my 3 year kidney transplant anniversary. Congrats to your son on his 4 month anniversary!
I had the same WBC challenge at my 4 month anniversary. I was taking 1,000mg bid Mycophenolate and 6mg Envarsus XR (Tacrolimis).
Of course at 4 months, the immune suppression meds are at their highest (and there is normally residual of the immune suppression induction that was given in the operating room).
When I developed CMV, the immune suppression was reduced to 500mg bid Mycophenolate and Valcyte was added as the antiviral med to fight the CMV.
With the reduction of Mycophenolate, my leukopenia, neutropenia and high liver enzymes resolved. What is your son's transplant team telling you regarding their plan to resolve the low WBC? (It's a very common side effect of Mycophenolate).
Did they add Valcyte when CMV appeared and are they planning on reducing the Myfortic or making any changes? Or are they concerned that 4 months is too early to reduce or change?
I assume they are aware of the low WBC and CMV and you have discussed this with the transplant nephrologist at the transplant center?