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I would like to hear more from you as my current situation is the same as yours this has been going on since treatment with a Harvoni in Sept 2015 finished Dec 2015 been bounced around from dr to dr everyblood test you can imagine every scan mri spinal tap the list goes on and on and nobody can help me I keep getting pushed around to try to find answers and we are not he only ones i am in other groups where people are having serious problems I feel like I am dying a slow death,my brain had problems on treatment and I was so sick and still am,I wish I waited to see the side effects as they didn’t know what they were at the time of approval of the drug,I was told by the dr that headache and fatigue was the only side effect,well that was not true,they didn’t know long term side effects,as it was pushed through,I can barely move every joint hurts I have severe tinnitus the list goes on and on,my blood work went bonkers,hematologist said it’s a very potent drug and it effected my blood please respond thank you
Replies to "I would like to hear more from you as my current situation is the same as..."
Wow, yes, our stories are very similar! I'm happy to share/answer any further details you'd like to hear. I feel for you. I experienced the joint and bone pains as well. There were days that I woke up feeling like I had been in a terrible car accident. Everything hurt and I had to just lay down and move as little as possible. It was awful and caused me to miss a lot of work which put me in a financial crisis that I'm still in today. Have you had any infusions/phlebotomies done? How high did your hemoglobin & hematocrit get?
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I don't know what to say, I am so angry too! I was over 5'10", now i'm 5 6 or 5 8, can't get a definite answer. I had a bone density test at 46 and the doctor said I had the bones of a 20 yr. Old. During treatment my legs were hurting me. Very painful. The medicine does brain damage mainly which effects all body parts as told to me by loyd wright, the author. The medicine totally fried my bones. But, of course, the doctors will say I have osteopenia from getting older, NO! I would love to send you the documents I discovered during my research to prove they are lying but I am typing on this dam cell phone and this one finger thing sucks. We will stay in touch, once I get my co