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After Hep C Treatment

Infectious Diseases | Last Active: Jan 2, 2023 | Replies (170)

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@mick2

Hello sueleerock, What treatment did you take? I was on harvoni 2017. My life is so--much worse now. I have few days of feeling somewhat normal and then I crash! I wish this hell was over. I feel for you. My family doesn't get it. I don't even understand this hell I'm in. I am 63 and feel like I'm in my 100's! So sad and very frustrating! I would have rather had a shorter energetic life than a life of total misery 98% of the time. God Bless you!

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Replies to "Hello sueleerock, What treatment did you take? I was on harvoni 2017. My life is so--much..."

I am also 63. I was treated in 2008 with the highest dose of interferon and ribavarin. All of my siblings, sister and brother, had a different genoe type. My sis was treated with harvoni. I get so sick and tired of doctors assuming my siblings were drug addicts, neither of them were. I had unnecessary exploratory surgery in 1976, received blood transfusions.

Yeah, I can really relate to that. My two sons think I am a hypochroniac , not sure how to spell that.

My dear friend Susie refused to take the medicine, she died.

Hi I also was treated with Harvoni in 2015 it has been a living hell during and after trreatment after I had a blood transfusion in 1983 of 6 pts of blood a have a very low viral load and Normal liver functions no fibrosis,my other drs just followed me for years and this dr thought it was best to treat we’ll that was the worse thing I ever did,I have neuropathy, severe tinnutius 24/7 joint pain, blurry vision,I have had extensive blood work,mri,spinal tap you name it I have had the test done, I was so sick during treatment I should have stopped it myself dr said they will go away the side effects, i lost my hair, my brain,fell down stairs fractured my L1 I am a total mess I was a healthy energetic person and now I can barely move they are a lot of people that had side effects I do believe that Harvoni was pushed through to soon and I was dumb enough to take it,my life is just existing this is not living my hematologist believes the drug was very potent and they didn’t know enough about the side effects 😥