I had hepatitis c (genotype 2a) for 23 years and towards the end was very sick (it was irritating how many health care workers told me that it wasn't from the hep c that I felt sick because hep c has no symptoms. That is not correct, especially once you have had it that long!). I was treated in 1997 with interferon and Ribavarin, 3 shots a week for 9 months. I am now in remission, virus undetected. They did not say cured back then. My son, aged 36, contracted the virus from a probe that was inserted in his scalp during his birth and was also treated with interferon and Ribavarin. Neither one of us has felt 100% since treatment. He told me he had research this online and had found a mao clinic paper about post-interferon syndrome, but couldn't find it again later. (He thought it had been purposefully taken down so that people wouldn't file lawsuits against the makers of the drugs, and so that others would not shun treatment. I'm not sure. But I can not find that paper either, and would love to.) In any case, I was pleased to come across post by others who have not felt well since treatment, and mentioning a diagnosis of post-interferon syndrome, be wise it is validating to those of us who are doctors have dismissed even the notion of it. Does anyone know where I can find that paper, or anything about post-interferon syndrome? Although I am so glad to have cleared the virus, I am still, this many years later, suffering from severe fatigue, some brain fog, achy muscles, back pain and some gut issues, which I did not have before treatment. Any information about this would be great.

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