Colleen.....Do you know of anyone that developed any serious heath issues after taking harvoni. I took it last year and developed a tumor on my pancreas, don't know for a fact that it's related. But I know of someone else that has the same problem. Could be a coincidence but sure would like to know.

Hi @pagegirl, I did a very quick google search and found several mentions of a potential link between harvoni and liver damage and possibly liver cancer. I found no mention of pancreatic tumours. Has your cancer team suggested that it might be related? Would this influence what type of treatment you would get for the pancreatic tumor?
These are questions I would want to ask my cancer care team.

Hi @pagegirl,
I'm Kanaaz Pereira, and I moderate the Infectious Disease group as well. I see that Colleen did reply to you, and I also wanted to follow up by introducing you to other members who have taken Harvoni, and may be able to offer more information. Please meet @airtruck54, @cldreif330, @bobuloops, @rkz06, and @peakbagger.

@pagegirl, what is your doctors' opinion about the side effects of Harvoni?

I actually didn't put 2 and 2 together until this week. A man (friend of a friend) whom had also taken harvoni, had developed the same issues I did. Only he's in bad shape. @ months ago I had my spleen and part of my pancreas removed, luckily the tumor was at the tail of my spleen. So now I am diabetic. I go back to see my surgeon next week. I'm going to take this information with me. You should google "Can Harvoni give me cancer" and check this out for yourself. It's scary ! Wish I had.

I have been experiencing permanent side effects after taking Pegasys interferon with ribavirin. I have severe fibromyalgia and chronic fatigue syndrome plus gastritis and esophogitis. I have vision problems. I finished treatment in 2009. I was told my side effects would wear off eventually but instead they are worse. I can no longer work or go to school. I function at less than 30% of normal. How many other people are suffering like me? I read that it is being called post interferon syndrome. What about lawsuits. My life is basically ruined, except I choose to go on the best i can. Klk370

Adverse reactions reported to the FDA show issues of pancreatitis. I did not see tumors but since this drug is now known to change our DNA anything is possible.

You are not alone. I finished treatment eight years ago. I to have chronic pain fatigue gastrointestinal problems Barrett's esophagus anxiety depression and something I didn't want to admit I'm loosing it having difficulty remembering.
Your life is not ruined it may seem so it's just changing. We have many things in common. One being having the courage to go on.

Hi @jerbobs, welcome to Connect.
Sounds like you have quite an array of conditions and symptoms to manage. Did you have some of them prior to treatment for Hep C?

I can imagine that it is a big first step to admit that you experience cognitive challenges. There are a lot of memory tips and tricks, and exercises available on the Internet. For example this one for the Epilepsy Society https://www.epilepsysociety.org.uk/memory-aids-reminders-and-brain-training#.WmzMMK6nGpo I especially hate it when I walk into a room with the intent on getting something or doing something, but I forget what it was. Frustrating.

What happens to you most often? What aids have you found to help you to remember things?

My keys. I try hang them up in a keyboard that spells KEYS it cuts down on frustration. But what I am experiencing is not remembering what I did a few days ago it brings on axniety and rage at times. Early on in my treatment I experienced it. Very scary. Treatment ended almost eight years ago. I m great ful for being negative for hepc but wasn't in formed enough by Drs. I was severely depressed from the beginning. My mother and sister died within weaks of each other. I had no symptoms of hepc. I am an American veteran. My medication was free why wouldn't I try be cured. A medicine that causes pain and suffering should be considered poison.

You are not alone. I suffer from similar symptoms. Wish I could find a doctor that could help me.