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Does anyone have discoid lupus?

Posted by dld404 @dld404, Mar 23, 2023

I am 77 yoa and have been diagnosed with Lupus for about 30 years.
last March I had surgery on my cervical spine and my surgeon requested that I go off Plaquenil. I have been of this for drug since 3/2022 and have been having outbreaks on my face that are very Scally and itchy. any suggestions ?

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 24, 2023

Welcome, @dld404. I'm tagging @pollyanne @jayrob624 @lbminichillo @jewel8888, who have experience with discoid lupus to join you in this discussion.

Have you discussed with your doctor whether you should return to taking hydroxychloroquine (Plaquenil) or not?

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1 reply
jayrob624 | @jayrob624 | Mar 24, 2023

I never took oral medication for discoid lupus. I receive injections directly into the lesion on my scalp to reduce the inflammation .

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1 reply
dld404 | @dld404 | Mar 25, 2023

Morning jayrob
I had shot directly into my scalp for areas of outbreak but they have not worked and I can't recall the name for the injection.
What has worked for you?
I have used several topical ointments and rx from my Dr but nothing seems to work for very long.

REPLY
dld404 | @dld404 | Mar 25, 2023
In reply to @colleenyoung "Welcome, @dld404. I'm tagging @pollyanne @jayrob624 @lbminichillo @jewel8888, who have experience with discoid lupus to join..." + (show)
@colleenyoung

Welcome, @dld404. I'm tagging @pollyanne @jayrob624 @lbminichillo @jewel8888, who have experience with discoid lupus to join you in this discussion.

Have you discussed with your doctor whether you should return to taking hydroxychloroquine (Plaquenil) or not?

Jump to this post

yes, we have talked about that avenue about 2-3 months ago and I decided to stay off Plaquenil.
but I have been experiencing more activity on my face.
Very frustrated

REPLY
dld404 | @dld404 | Mar 28, 2023
In reply to @jayrob624 "I never took oral medication for discoid lupus. I receive injections directly into the lesion on..." + (show)
@jayrob624

I never took oral medication for discoid lupus. I receive injections directly into the lesion on my scalp to reduce the inflammation .

Jump to this post

How long did the shots work for?
The shots I received didn't last for more h
than 7-10 days.

REPLY
jayrob624 | @jayrob624 | Mar 29, 2023

I started the shots in Dec 2021 once a month for 1 year and now I am only getting them every other month. I have some hair growth in the area and the redness and itching has almost gone completely.

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