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After Hep C Treatment

Infectious Diseases | Last Active: Jan 2, 2023 | Replies (170)

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@smaug48

Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had 92 weeks of interferon for Hepatitis C (which didn't work) 2008-2009 and now feel much worse than I did before starting treatment. Any information would be appreciated, thanks.

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Replies to "Does anyone have information about the Mayo Clinic treating people for Post Interferon Syndrome? I had..."

I would also like to have information about any treatments to post interferon syndrome I'm having short term memory loss brain fog just wondering if there is any treatment or connections that anyone else knows of I went through interferon and ribavirin treatment twice 48 weeks each time second time my virus was eliminated and now I am experiencing these symptoms I have no dementia in my family at all

Hi Jeffrey,
You might wish to view this article from Mayo Clinic, which details various drugs, including the hard-to-tolerate antivirals that you are concerned about:
– Coping with side effects of hepatitis C drugs: https://www.mayoclinic.org/hepatitis-c-drug-side-effects/art-20121674

You may also wish to join this discussion on Connect:
- Post Interferon Syndrome https://connect.mayoclinic.org/discussion/post-interferon-syndrome/

Hi there.
I had Hep C from contaminated blood transfusions from 1977 to 1988. It was not discovered till 2003. I had treatment with interferon and ribavirin from 2004 to 2006. I was very ill lost my hair became aggressive had great memory loss digestive problems confusion constant tiredness etc. After being cleared from Hep C i have never really felt well again. I tried to return to work but was forced to early retirement due to illness and mental and physical and no longer to work as an nhs nurse which ended my career. It dissolved my marriage and my home was reposesed. All these years of lost earnings and feeling so isolated are taking their toll. I have up trying to explain to GP after GP about my constant tiredness how some days its so hard to get up and do normal things how I'm always feeling like I have the flu then I get better for a while then it's back again. My memory is terrible I cannot retain new info. I get lost when travelling easily get the wrong bus or train etc and so on I still have a swollen abdomen have sweating episodes and insomnia aching joints tenderness around my liver area. My biopsy during treatment showed fibrosis and early portal Septa stage 2 and liver cell necrosis grade 3. I believe the treatment has left me with all these side effects.