Small Fiber Neuropathy: What helps?

Posted by lisadog33 @lisadog33, Mar 28, 2017

I have been diagnosed with Small Fiber Neuropathy. My problem is this. Since before they diagnosed me, I was having other symptoms that I thought were not related including loss of appetite/weight loss, bladder control, bowel control, problem with eyesight at times, tremors, sleep issues among some other things. I was told by my Neurologist that those things are not related to small fiber neuropathy but when I look it up, it says it can affect your autonomic nervous system. What is the truth. I am having a heck of a time with bladder and bowel issues as well as either sleeping through the alarm or not sleeping at all. I hope someone can shed some light on this for me. Thank you.

Interested in more discussions like this? Go to the Neuropathy Support Group.

rosy54 | @rosy54 | Mar 27, 2023

In reply to @jonelson4 "I have been taking magnesium glycinate at night, too, and it is helping. I also take..." + (show)

Is the B12 helping for memory problems too? I get monthly shots and taking vitamin B12 too ?

unclefreddy | @unclefreddy | Mar 27, 2023

In reply to @jonelson4 "I take 500 mg magnesium glycinate before bed. Also take 600 mg alpha lipoid acid and..." + (show)

Did the magnesium help?

Amanda Roe | @amandajro | Mar 27, 2023

In reply to @katee "Something that has helped me with peripheral neuropathy. My foot neuropathy was the result of chemotherapy...." + (show)

Hello @katee, and welcome to Mayo Clinic Connect. Sharing tips from your experience is a gift to others looking for options, so thank you for joining.

You will see that I have moved your post into a discussion where others can also read your your experience. You can find your post here:
- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/

What type of magnesium and what amount have you found helpful?

katee | @katee | Mar 27, 2023

In reply to @michael149 "was it hot or cold water" + (show)

Hi
I use very warm water to dissolve

jonelson4 | @jonelson4 | Mar 27, 2023

In reply to @unclefreddy "Did the magnesium help?" + (show)

I think so-I am sleeping better. I usually go right to sleep but still wake up after about 4 hours with a little burning and tingling in my feet. After getting up and walking for a few minutes, I can usually go back to sleep for 3 or more hours.

katee | @katee | Mar 27, 2023

I believe that neuropathy is all about the nerve system. Read some more on it. Maybe also check if you have something else like fibromyalgia, have a read up on it. It can be diagnosed by a muscular skeletal physician.

jonelson4 | @jonelson4 | Mar 27, 2023

In reply to @rosy54 "Is the B12 helping for memory problems too? I get monthly shots and taking vitamin B12..." + (show)

No, my memory is good. I am on a very low carb, no sugar diet and don’t take any prescriptions. My only medical problem has been the pain, tingling and burning in my feet after having Covid in 2021. I have never had the Covid shots.

katee | @katee | Mar 27, 2023

In reply to @unclefreddy "Did the magnesium help?" + (show)

The magnesium did help with the severe foot cramps. Now the epsom salts seems to be helping with feeling in my toes

mdh9 | @mdh9 | Mar 28, 2023

In reply to @madison2023 "I take 200mg of magnesium before bed and 1000 B12 and vitamin D in the morning...." + (show)

Magnesium glycimate is most absorbable. Vit Bs in a neuropathy natural supplement is safest. Many Bs are synthetic including the shots and are not absorbable and float in blood causing blood tests to be high.