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Tinnitus and brain tumor

Posted by EES1 @ees1, Sep 10, 2018

Meningioma, cavernoma, leukocytoclastic Vasculitis, osteoarthritis, abnormal EKG (enlarged left anterior descending artery-Calcium scoring test soon). Now high-pitched tinnutus. All diagnosed in past 15 months. I think the Grim Reaper is laughing.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Sep 6, 2021
In reply to @eastmas1 "Thank you. What phone number. I understand that the Mayo Clinic has more than one location...." + (show)
@eastmas1

Thank you. What phone number. I understand that the Mayo Clinic has more than one location. I have been trying to get an answer for well over a year.

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Yes, the main locations are Phoenix, AZ, Jacksonville, FL and Rochester, MN. The phone numbers are listed on this webpage along with other useful details http://mayocl.in/1mtmR63

Phoenix/Scottsdale, Arizona
480-301-8484
8 a.m. to 5 p.m.
Mountain time, Monday through Friday

Jacksonville, Florida
904-953-0853
8 a.m. to 5 p.m.
Eastern time, Monday through Friday

Rochester, Minnesota
507-538-3270
7 a.m. to 6 p.m.
Central time, Monday through Friday

REPLY
rbryan | @rbryan | Dec 5, 2021
In reply to @lioness "@hopeful33250 Ive had this so long ,li ke you said it comes and goes yesterday it..." + (show)
@lioness

@hopeful33250 Ive had this so long ,li ke you said it comes and goes yesterday it was really loud but now its a soft ring I was told same with hearing aids but its still there hasn't gone away so don't waste your money I am going to look into the med called Lipoflavinoid ? I,ve heard it helps.

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At 88 I have taken two of this vitamin for about five years now. The ringing now is very low. Still there but I can endure the low level. Takes a few months before it takes effect. Don't miss taking it. One in morning and one at night. I think mine came from many years of working around my machine shop without ear protection.

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2 replies
lioness | @lioness | Dec 5, 2021
In reply to @rbryan "At 88 I have taken two of this vitamin for about five years now. The ringing..." + (show)
@rbryan

At 88 I have taken two of this vitamin for about five years now. The ringing now is very low. Still there but I can endure the low level. Takes a few months before it takes effect. Don't miss taking it. One in morning and one at night. I think mine came from many years of working around my machine shop without ear protection.

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@rbryan Thanks for the information. I will have to get some I have been drinking Mullein tea that has helped also

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robinbird42 | @robinbird42 | Feb 28, 2022

My husband has not been able to work for over a year now, due to muscle jerks, loss of balance, neck and face pain, and anxiety due to all of this. He was diagnose with eagle syndrome, and spinal stenosis, last year (2021) and we have no insurance, and are running into problem getting financial assistance. Does anyone know of ANY organization to help. He is miserable, & extremely depressed. Please help.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 8, 2022
In reply to @robinbird42 "My husband has not been able to work for over a year now, due to muscle..." + (show)
@robinbird42

My husband has not been able to work for over a year now, due to muscle jerks, loss of balance, neck and face pain, and anxiety due to all of this. He was diagnose with eagle syndrome, and spinal stenosis, last year (2021) and we have no insurance, and are running into problem getting financial assistance. Does anyone know of ANY organization to help. He is miserable, & extremely depressed. Please help.

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@robinbird42, oh my this must be so stressful for both of you. I recommend that you type your Zip code into this search engine https://www.findhelp.org/
Find Help can help you find financial assistance, food pantries, medical care, and other free or reduced-cost help in your local area.

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henry55 | @henry55 | Feb 13, 2023

How is your health going? Have you received the right health care? My wife has been told she has Eagles syndrome and is being referred to specialist

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mayobrain3 | @mayobrain3 | Mar 2, 2023

Is this combination of tenitis and tumor a common occurrence or does it depend on location of tumor and how close it is to the ear. Are both eats affected?

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jaejae | @jaejae | Mar 26, 2023
In reply to @colleenyoung "@de9g you may wish to join Connect members talking about Eagle's Syndrome here: - Eagle's Syndrome..." + (show)
@colleenyoung

@de9g you may wish to join Connect members talking about Eagle's Syndrome here:

- Eagle's Syndrome https://connect.mayoclinic.org/discussion/eagles-syndrome/

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I am looking for suggestions of surgeons in Maryland that have done styloidectomy for two styloids 4.7cm and 4.1cm causing ear pain, headaches, off balance. Compressing my coratid. I was referred to someone at John’s Hopkins but I would like to hear from others in Maryland that have had this surgery.

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ess | @ess | Mar 26, 2023
In reply to @rbryan "At 88 I have taken two of this vitamin for about five years now. The ringing..." + (show)
@rbryan

At 88 I have taken two of this vitamin for about five years now. The ringing now is very low. Still there but I can endure the low level. Takes a few months before it takes effect. Don't miss taking it. One in morning and one at night. I think mine came from many years of working around my machine shop without ear protection.

Jump to this post

What vitamins?

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patbaret | @patbaret | Nov 4, 2023

Feel bad all of us who suffer with tinnitus.
I have had some hearing loss for last 2 years. 2 bouts of vertigo within 6 months of each other. PT helped with first one, but second one I became worse with dizziness, vomiting and developed tinnitus. Was have Headaches for yes. Finally my ENT MD did MRI and found I had a meningioma. I went to Beltone and bought some very expensive hearingaids and yes for now they have really helped me. I am hear better and noise has drowned out. If you have nothing to loose. You can return them if not right for you. As for the meningioma still waiting to see someone.

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