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MGRS Diagnosis

Blood Cancers & Disorders | Last Active: May 23 10:12am | Replies (28)

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@colleenyoung

Welcome, @tdseid1961. How did the stem cell collection go? How are you doing?

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Replies to "Welcome, @tdseid1961. How did the stem cell collection go? How are you doing?"

Stem cell collection went excellent, collected over 6 million in 2 days. When I returned home I ended up with a blood clot in my neck from the port, so I'm on blood thinners and have had 3 more weeks of treatment. I only have 5 more treatments then Dr is hoping I can be on 1 shot a month. Praying that I don't need a transplant for a long time. Looking forward to a summer with friends and family feeling good.

Sorry for not responding, I just found this again. Stem cell collection went well but I ended up with large blood clots in my jugular vein and chest. So I did shots for 4 months 2x a day. Not fun! Finished chemo 1st of June with no maintenance. My number started going back up by August and in September was not good. We decided to try Darzalex weekly before moving to Sctp, it's working great! I am so relieved. My hair is still not good from the chemo and collection I ended up having to wear a wig and the weight gain in my belly is a challenge. My Dr said it all the water but my kidney function is good and my urine protein dropped from 791 to 435 last month. Has anyone else been successful losing weight while on Darzalex, dex, anti viral and montelukast?