Has anyone improved bone density without meds?
I have a very problematic dental history and will continue to need additional root canals and implants. I also have Sjogren's Syndrome and want to avoid any drugs that cause rheumatic symptoms. Other issues in my health history make all of the meds risky for me. That said, I work out almost daily, lift weights, maintain a healthy diet, take all the recommended supplements, and get most of my calcium nutritionally. My endocrinologist wants me to take an infusion/injectable drug. I dread the side-effects, yet I'm afraid of fracturing, which hasn't happened over the many years I have had osteoporosis. That said, my numbers are getting worse (-3.2 spine, -3.1 hip). I need to do something more than I've been doing, and am at a loss. I need hope and solutions I can be at peace with. Thanks for any comments or suggestions!
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I also had breast cancer that was fed by estrogen. One in 8 women has breast cancer and of those cancers. 70% are fed by estrogen, I have read.
Reading about weight lifting makes me nervous! I found tai chi helpful but I don't even lift two seltzer bottles. Fractures make lifting tough.
So sorry!
Hi there,
I actually just started the Monday morning routine after two years of Tymlos which returned some of my scan numbers to Osteopenia and 1 year of Prolia which was quite problematic. The tablet I take now is alendronate.
Good luck to all of us as we strive to make the best decisions.
Chris
Teb, could you share your t scores before and after Forteo? How long did you take Forteo? Are you working an endocrinologist?
I also have GERD and some other GI issues but am discontinuing Prolia after 5 injections (2 1/2 years) due to extreme hair loss. My endocrinologist is on board with Evista which is oral medication. I have not started it yet but will post if any side effects and when I have my next scan.
Best wishes to all, Cindy
Good luck! I hope it works for you.
I cannot understand why women are not followed for osteoporosis beginning at menopause to get a baseline and then retested annually. It used to be every five years. At my last annual check up I mentioned to my doctor I hadn’t had a dexascan in a while. She said we don’t test every 5 years any more. I was 70 at the time. Because I asked, she ordered one. My osteoporosis had progressed obviously and she wanted me to take one of the biophosphates. I didn’t want to do that due to side effects, one being possible fracture of the jaw. I’m currently taking a calcium supplement called Algaecal made from algae, a food source and absorbed better than the other calcium supplements. Additionally, I also exercise with ankle weights, climb stairs, walk and run and getting back to tennis. And incorporate as many high calcium foods as I can daily. I’m asking for another dexascan at my next annual.
@leeosteo , sure thing...My T-score at my first dexa at age 57 was -2.8 in my spine (hips are not in osteo). During the two years following that dexa I increased my exercise, etc, trying to improve my density and I dropped to -3.2. I then went on Forteo. After my first year on Forteo, my dexa showed I was back at -2.8. You get the highest gains the first year. Unfortunately, the second year was kind of a waste as my T-score lowered to -2.9. I've been on HRT since then. I just had a dexa last month after a 3 year lull and according to the total number, my spine supposedly is holding steady while I had a very small increase in density in my hips. Weirdly, each of the lumbar vertebrae show a decrease individually yet the total T score is exactly the same at -2.9. I don't understand how that can possibly be. I have an upcoming appointment with an endocrinologist (new doc for me but have always been seen by endos) so I will be discussing this with him along with a million other things! I'm hoping that now that the black box warning has been removed from Forteo that there is the possibility of going on it again for 1 year. I doubt it but will be discussing it with him. The thing I loved about being on Forteo was the freedom from ruminating about this constantly! That alone was a huge relief. I wish my gains were greater but at least I gained something and didn't continue down the path of greater loss.
I am going to insist that my primary doctor order another Dexa for me when I see him at the end of April for my yearly physical. My last one was back in August, and since I am newly into menopause and took a drop down from osteopenia to osteoporosis in the two years leading up to menopause, I want to make sure it is not getting worse. If nothing has changed, then I will still go ahead and send all my records to Dr. McCormick to get his opinion. My feeling is that if I went on anything, I would want to start with Tymlos very slowly and ramp up as you did, since I tend to react so strongly to medications. From what you had said though, insurance might not be willing to pay for it. I really question going on a bisphosphonate first, and that seems to be what they want to push you into. Any advice if I have to argue for a bone builder right away?
Tymlos has a patient assistance program. I got mine for free (18 months). You call Together with Tymlos and they help you connect to Radius Assist.
OR, you could take Fosamax once and if it doesn't agree with you, insurance might cover Tymlos then. Some will after you try another med first.
I think this needs to change. Now that there is a generic Forteo, that may be easier to get as a first med (I don't know if this is true) but that pen dose is not adjustable to my knowledge. Someone can correct me if that is not true.