Hello,
Thank you for responding, I am currently going through some imaging to determine if I will be a candidate. Can you tell me if you were selected for the trial medication or the best standard of care? How are you doing on the trial?
Thank you
Hello,
Thank you for responding, I am currently going through some imaging to determine if I will be a candidate. Can you tell me if you were selected for the trial medication or the best standard of care? How are you doing on the trial?
Thank you
I am getting the trial medication. I'm doing well. I get my third infusion on Tuesday. The post infusion protocol for radiation is kind of a hassle, but will be with it. I am fatigued for several days after treatment. I've had occasional nausea, but not bad. I didn't see a big downside to the study for me.
With a little luck, I'll qualify for the trial. With the higher grade cancer (3) Ki67 42, I'm hopeful the trial med will have some lasting effect.
Thanks again
Sean
As I was not familiar with the study. I appreciate your bringing this clinical trial to Mayo Clinic Connect.
I did find some information on Mayo Clinic's website regarding the study. Here is the link to that information:
--Clinical Trials https://www.mayo.edu/research/clinical-trials/cls-20532370
Did you both have PRRT treatment prior to being selected for this study or is this your first time being treated with PRRT?
As I was not familiar with the study. I appreciate your bringing this clinical trial to Mayo Clinic Connect.
I did find some information on Mayo Clinic's website regarding the study. Here is the link to that information:
--Clinical Trials https://www.mayo.edu/research/clinical-trials/cls-20532370
Did you both have PRRT treatment prior to being selected for this study or is this your first time being treated with PRRT?
I have not had PRRT, still waiting to see if I am accepted to the trial. If I am then I would receive either the trial medication or CAPTEM. To date, I have had only surgery and some Lanreotide injections.
As I was not familiar with the study. I appreciate your bringing this clinical trial to Mayo Clinic Connect.
I did find some information on Mayo Clinic's website regarding the study. Here is the link to that information:
--Clinical Trials https://www.mayo.edu/research/clinical-trials/cls-20532370
Did you both have PRRT treatment prior to being selected for this study or is this your first time being treated with PRRT?
The Trial was my first treatment. I didn't have any treatment post op. I had my 3rd treatment yesterday. No nausea. Some fatigue but not bad. Scans in May. I'm very hopeful.
The Trial was my first treatment. I didn't have any treatment post op. I had my 3rd treatment yesterday. No nausea. Some fatigue but not bad. Scans in May. I'm very hopeful.
That is great, @lu7. I hope that your upcoming scans give you a good report.
Thanks for providing information about this clinical trial.
@ssf
When you find out if you have been accepted to the clinical trial, I would enjoy hearing from you and if you are comfortable doing so, please post your experiences as you go through the trial.
I had a CT Scan this week to assess tumor status after three infusions in the COMPOSE trial. The marker tumors are smaller. My labs look great and I will get my 4th infusion in two weeks. Just wanted to update those interested in PRRT. @ssf, have you entered the trial?
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Hug
I am in this trial.
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Hug
1 ReactionHello,
Thank you for responding, I am currently going through some imaging to determine if I will be a candidate. Can you tell me if you were selected for the trial medication or the best standard of care? How are you doing on the trial?
Thank you
-
Like -
Helpful -
Hug
1 ReactionI am getting the trial medication. I'm doing well. I get my third infusion on Tuesday. The post infusion protocol for radiation is kind of a hassle, but will be with it. I am fatigued for several days after treatment. I've had occasional nausea, but not bad. I didn't see a big downside to the study for me.
-
Like -
Helpful -
Hug
1 ReactionWith a little luck, I'll qualify for the trial. With the higher grade cancer (3) Ki67 42, I'm hopeful the trial med will have some lasting effect.
Thanks again
Sean
-
Like -
Helpful -
Hug
3 ReactionsYes, that is my hope. I am getting treatment 3 tomorrow. Best wishes to you!
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Helpful -
Hug
1 ReactionHello @ssf and @lu7,
As I was not familiar with the study. I appreciate your bringing this clinical trial to Mayo Clinic Connect.
I did find some information on Mayo Clinic's website regarding the study. Here is the link to that information:
--Clinical Trials
https://www.mayo.edu/research/clinical-trials/cls-20532370
Did you both have PRRT treatment prior to being selected for this study or is this your first time being treated with PRRT?
I have not had PRRT, still waiting to see if I am accepted to the trial. If I am then I would receive either the trial medication or CAPTEM. To date, I have had only surgery and some Lanreotide injections.
-
Like -
Helpful -
Hug
1 ReactionThe Trial was my first treatment. I didn't have any treatment post op. I had my 3rd treatment yesterday. No nausea. Some fatigue but not bad. Scans in May. I'm very hopeful.
-
Like -
Helpful -
Hug
1 ReactionThat is great, @lu7. I hope that your upcoming scans give you a good report.
Thanks for providing information about this clinical trial.
@ssf
When you find out if you have been accepted to the clinical trial, I would enjoy hearing from you and if you are comfortable doing so, please post your experiences as you go through the trial.
I had a CT Scan this week to assess tumor status after three infusions in the COMPOSE trial. The marker tumors are smaller. My labs look great and I will get my 4th infusion in two weeks. Just wanted to update those interested in PRRT. @ssf, have you entered the trial?
-
Like -
Helpful -
Hug
2 Reactions