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COMPOSE PRRT Lu Edotreotide Trial Study

Neuroendocrine Tumors (NETs) | Last Active: Oct 12, 2023 | Replies (14)
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@lu7

I had a CT Scan this week to assess tumor status after three infusions in the COMPOSE trial. The marker tumors are smaller. My labs look great and I will get my 4th infusion in two weeks. Just wanted to update those interested in PRRT. @ssf, have you entered the trial?

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Replies to "I had a CT Scan this week to assess tumor status after three infusions in the..."
ssf | @ssf | May 5, 2023

I’m so happy for you. Unfortunately I was not allowed in the trial, I was hoping for a shot. My Oncologist started me on CAPTEM and I just finished my first 14 day dosage. Will have an MRI here in the near future to gauge how I am doing. You sound great, keep us posted.

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Teresa, Volunteer Mentor | @hopeful33250 | Jul 10, 2023

Hello @lu7,

It's been a while since you last posted. Have you completed the COMPOSE trial yet? I was wondering how the treatment is going and also how you are feeling.

Will you post an update when it's convenient for you?

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