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COMPOSE PRRT Lu Edotreotide Trial Study

Neuroendocrine Tumors (NETs) | Last Active: Oct 12, 2023 | Replies (14)

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@hopeful33250

Hello @ssf and @lu7,

As I was not familiar with the study. I appreciate your bringing this clinical trial to Mayo Clinic Connect.

I did find some information on Mayo Clinic's website regarding the study. Here is the link to that information:
--Clinical Trials
https://www.mayo.edu/research/clinical-trials/cls-20532370

Did you both have PRRT treatment prior to being selected for this study or is this your first time being treated with PRRT?

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Replies to "Hello @ssf and @lu7, As I was not familiar with the study. I appreciate your bringing..."

I have not had PRRT, still waiting to see if I am accepted to the trial. If I am then I would receive either the trial medication or CAPTEM. To date, I have had only surgery and some Lanreotide injections.

The Trial was my first treatment. I didn't have any treatment post op. I had my 3rd treatment yesterday. No nausea. Some fatigue but not bad. Scans in May. I'm very hopeful.