Connect
Myelomalacia: Let's connect
I recently had a MRI of my cervical spine and moderate to severe myelomalacia was discovered. I already have a C3 to C5 fusion. Symptoms include pain in arms, neck and shoulders, off balance, light headed, difficulty picking up small items. Has anyone else experienced this diagnosis? What has been done about it? Seeing a neurosurgeon soon but not excited about another neck surgery. However what I read about it says if left untreated could cause serious nerve issues. Any help would be greatly appreciated.
Like
Helpful
HugInterested in more discussions like this? Go to the Spine Health Support Group.
Connect
Does anyone know if Mayo has anybody doing research into stem cells And how they might improve myelomalacia?
I was recently diagnosed with Myelomalacia Is there anyone in this group with this same diagnosis? Have you had surgery for it?
Hello @dhansen78 and welcome to Mayo Clinic Connect.
Is surgery being recommended for you at this time?
-
Like -
Helpful -
Hug
1 ReactionI see my neurosurgeon next week. Will discuss options at that time. I'll keep you posted.
-
Like -
Helpful -
Hug
1 ReactionThank you. I'll be checking back in to see if you've got anything to report. Same with me.
Thank you, Amanda.
-
Like -
Helpful -
Hug
1 ReactionThank you Amanda. I looked for this and couldn't find it. Very much appreciated.
The first neurosurgeon I saw did not discuss surgery for the myelomalacia, but for 2 discs. I will see her again for some clarification. I also have a 2nd opinion scheduled for end of April and have contacted my insurance about having multiple opinions.
When I was diagnosed over 3 years ago the neurologist tod me Mayo was the only place doing stem cells.
-
Like -
Helpful -
Hug
1 ReactionThank you, Robin.