Thank you for reaching out for help. No doubt you are overwhelmed right now. Mayo Clinic has several WM specialists. WM is rare and most doctors are not familiar with symptoms. I would recommend contacting and joining the I.W.M.F. (International Waldenstrom’s Macroglobulinemia Foundation) for excellent and accurate educational and patient support. https://iwmf.com. I would also suggest getting in touch with our Australian SG Leader –
Australia WMozzies(link is external) David Young
Phone: +0428 187 025
He can connect you with WM doctors and will be an excellent source of support. I will be happy to help in any way I can. I happen to be an IWMF MInnesota and WIsconsin support group leader.