← Return to Anyone here have Fuch's Dystrophy?

Discussion

Anyone here have Fuch's Dystrophy?

Eye Conditions | Last Active: Oct 23 12:11pm | Replies (84)

Comment receiving replies
@irinig

Hello Colleen. I am an ex-chemist & know that foreign objects in the body (brain, blood-brain barrier/ENT etc) affect all areas not just the immediate vicinity…Not surprised or shocked by my doctor’s response.

In my case I cut down the Muro 125 to 3x/day in both eyes (previously 4x in the bad eye) & sleep with Muro 125 cream in both eyes. It is uncomfortable & a pain though trial & error for sure, as I await for symptoms to ameliorate. I don’t like spitting like a truck driver & hate how my eyes sting, but I do it. My left ear rings a lot, my throat feels weird often…I have heard of worse symptoms. As yet, I am 64 & do not Medicare qualify until Sept. So until then…I will do the best I can & not let this illness get the better of me. Oddly it got way worse during the Covid. times…Any connection?

Thank you Colleen for your message to us FDs‼️

Jump to this post


Replies to "Hello Colleen. I am an ex-chemist & know that foreign objects in the body (brain, blood-brain..."

Hello Coleen, my name is Linda and I live in Phoenix, Arizona, and you have described my situation to a T..
I’ve had two corner transplants and my vision is still not good at all.. They had give me so many eye drops and eye creams that only make me sick and do not help my vision at all..
I feel like I have a shade over my eyes daily..
I have severe Migrains that make me sick almost daily.. I also feel like I’m chocking on constant drainage daily..
All I get from my Dr’s is more meds that keep me sick to the point I can’t function..
They only treat one problem instead of connecting the dots..
I’m being treated like a science project is what I feel..
I seriously need some help with this..
I have these symptoms on a daily basis and I’m not getting any relief..
Please help if you can..