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Essential Thrombocytosis - what's your experience with Jakifi?

Blood Cancers & Disorders | Last Active: Mar 16, 2023 | Replies (11)
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@auntkk

@nohrt4me
I looked up your CALR, too many blood cells? Is that correct?
My husband's cell count is ok, just the platelets are way off. Thrombocytopenia is what he has. I hope & pray you get better as well as my hubby.

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Replies to "@nohrt4me I looked up your CALR, too many blood cells? Is that correct? My husband's cell..."
nohrt4me | @nohrt4me | Mar 16, 2023

I have essential thrombocythemia (ET), too many platelets. All other counts were normal as of January, and I have been stable on daily oral chemo, knock wood

The main concern for ET patients with covid seemed to be the clotting effect of the virus, because we already have clot risks as part of ET. I had not heard that covid or the covid vaccines might cause thrombocytopenia, so your husband's experiences were news to me.

Hope he continues to improve!

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