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Liver transplant - Let's support each other

Transplants | Last Active: 14 hours ago | Replies (1623)

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@mbentley

Hi I hope to be on the TP list after Wednesdays committee meeting.
My nurse is Christina and she’s wonderful. I’m afraid I bother her so much with questions.
I’ve learned a lot. I live in Ky and will need to relocate near the hospital so we can have our pets and family visits. Still I have many questions on what’s going to happen.

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Replies to "Hi I hope to be on the TP list after Wednesdays committee meeting. My nurse is..."

Hi, @mbentley. Welcome to Connect. I imagine that tonight is going to be a sleepless night as you wait to get a notification from the Transplant Committee. I hope that tomorrow night you will sleep peacefully, with decision and being listed. It is both frightening and exciting.

@parrot53, @mbentley, @ajdo129, have provided helpful information, already.
My transplant was at Mayo in Rochester, and my call was from my transplant surgeon. It came at 6:42 AM, and she asked me how I felt and if I was ready to have transplant surgery because they had organs for me. She told me to come right on the hospital, and to report to the transplant desk, and that the nurses would be waiting for me and take care of everything. (I must note that my husband and I were living at the Gift of Life Transplant House, only 7 blocks away with a patient shuttle.) So I just had to show up...and Mayo took care of everything. Plus my husband was always nearby or with me up until I was taken to surgery - and he was with me in recovery.

Your nurse is going to guide you and your spouse/caregiver through every step of waiting process. Once you are on the active transplant list. you will have the opportunity to ask your questions about the specifics at Mayo Jacksonville. There will be lots of information, and you will likely feel overwhelmed at times. That's okay because you just need to take care of you while the nurse(s) and doctor(s) guide you through every step.

Mbently, I live in central Kentucky, and was transferred to Mayo MN by my KY transplant dept. If you are comfortable share - Have you been a patient at Mayo in Jacksonville for a while? Or are you in Jacksonville because of the transplant?