CAR-T Cell Therapy: Introduce yourself and connect with others

Posted by Colleen Young, Connect Director @colleenyoung, Sep 17, 2018

Welcome to the CAR-T Cell Therapy group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who have experience with CAR-T cell therapy or are caring for someone on CAR-T cell therapy. There are so few people who have experience with this new cancer immunotherapy. Together we can learn from each other, support one another and share stories about living with cancer and coping with the challenges of treatment.

Let’s chat. Why not start by introducing yourself? When did you or your family start therapy? How are you doing today?

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

pgollinger | @pgollinger | Feb 26, 2023

Hello everyone,
I have stage 2 multiple myeloma and will be starting a clinical trial for Car T-cell therapy. I have not yet started any treatment and will not know for a a while if I will be randomized to received the Car T-cell therapy. I will be following along on this site and updating as I progress. Good luck to all!
pgollinger

henry55 | @henry55 | Feb 26, 2023

Hello, I am currently not receiving any cancer treatments. Just a PET scan every 6-8 months to keep an eye on things. I feel lucky and blessed beating cancer twice now. Thank goodness for CAR-T

ericg | @ericg | Feb 28, 2023

I'm looking for studies on Car-T or other antibody treatment for ovarian cancer- high serous? I've read that Car-T is not being used on solid tumors but recently heard of a very small study in Australia. Anything in the States? Treatments in addition to taxol and carboplatin?

363 | @363 | Mar 9, 2023

In reply to @colleenyoung "@363, it sounds like treatment is working for your sister with tumors shrinking and even disappearing...." + (show)

Unfortunately the Car-t failed and the cancer has progressed and new tumors..She is currently in ICU on a ventilator and no treatment plan. Seems all failed her..Chemo, Radiation, Car-T , Steroids, praying she can come off the vent and get some sort of treatment..anyone have any advise it would appreciated,

363 | @363 | Mar 10, 2023

In reply to @363 "Unfortunately the Car-t failed and the cancer has progressed and new tumors..She is currently in ICU..." + (show)

Thank You

Bob, Alumni Mentor | @grandpabob | Mar 11, 2023

In reply to @363 "Unfortunately the Car-t failed and the cancer has progressed and new tumors..She is currently in ICU..." + (show)

I am so sorry to hear that. It is difficult to understand how treatments help some and yet not others. The only suggestion I can offer is to keep her as comfortable as possible and if possible get another opinion on her prognosis.

363 | @363 | Mar 11, 2023

In reply to @grandpabob "I am so sorry to hear that. It is difficult to understand how treatments help some..." + (show)

Thank you so much..We did get good news today after 18 days on a ventilator she passed the test and they will now start to ween her off it..prayed for this and now will pray for more miracles..

363 | @363 | Mar 13, 2023

In reply to @363 "Thank you so much..We did get good news today after 18 days on a ventilator she..." + (show)

Thank you so much

Bob, Alumni Mentor | @grandpabob | Mar 13, 2023

In reply to @363 "Thank you so much..We did get good news today after 18 days on a ventilator she..." + (show)

That is absolutely wonderful news, I hope things continue on a positive path for all of you.

363 | @363 | Mar 13, 2023

In reply to @grandpabob "That is absolutely wonderful news, I hope things continue on a positive path for all of..." + (show)

Thank you again so much..JoAnn just came on ventilator a few hours ago and is now on BPAP for 4 hours for transition...praying and praying she will be able to breathe with just nose piece soon..very much appreciate your kindness.

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