Has anyone experienced internal vibrations?

Posted by redladyjoni @redladyjoni, Nov 26, 2018

I started having the only way I can explain it is internal vibrations. I've had them for 3 months now, I went to t hihe ER and they told me it was anxiety. A doctor diagnosed me at a clinic as having Lyme disease I've started a 21-day prescription of Doxycycline I'm on day 7. I went to a psychiatrist a week ago to get something because of my nerves are just over the brink. He prescribed me Gabapentin and Valium I've only been on them a few days.
Has anyone experienced these internal vibrations?I have them almost 24/7 chest neck stomach from the hips down. I have more lab tests that should be in today, but the doctor's office said that they would not call unless there was some abnormality in the lab work.

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Profile picture for cathy514 @cathy514

yes I have them all day every and cannot get diagnosed 2 neurologist same office say anxiety it is NOT anxiety no reslove I am miserable and have tinnitus too

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Have you ever been exposed to ticks I was exposed as a young child in the Adirondack Mountains I know I had ticks on me and at that time antibiotics were not given I have a vibration feeling often in my body which seems to make me feel weak at the same time. I've experienced this twice in the past and was diagnosed with Lyme disease it will show up in the blood when a Lyme test is given . Thank God intravenous antibiotics were finally given. oral antibiotics simply don't work I got over it in about 6 weeks each time and was fine for many years until it seems it comes back especially it seems if I am overly tired. I have this at the present time and will be looking for a doctor to put me back on intravenous antibiotics. I can't believe how ignorant many doctors are about Lyme disease.

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Profile picture for 212joanie @212joanie

Have you ever been exposed to ticks I was exposed as a young child in the Adirondack Mountains I know I had ticks on me and at that time antibiotics were not given I have a vibration feeling often in my body which seems to make me feel weak at the same time. I've experienced this twice in the past and was diagnosed with Lyme disease it will show up in the blood when a Lyme test is given . Thank God intravenous antibiotics were finally given. oral antibiotics simply don't work I got over it in about 6 weeks each time and was fine for many years until it seems it comes back especially it seems if I am overly tired. I have this at the present time and will be looking for a doctor to put me back on intravenous antibiotics. I can't believe how ignorant many doctors are about Lyme disease.

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Sorry about the Lyme disease n yes I agree some Drs don’t have an idea what my vibrations are all about Except, on my MRI it does show a cyst n the spine about 3 inches long that may be preventing fluid to flow through properly. And he’s a Neurosurgeon who should know better n study more instead of telling me I need to follow up w a Neurologist. Well the one he had sent me to in the beginning only ran tests n didn’t want to get his hands dirty the way I feel. Just wants to sit back run the scans n then say sorry n not even evaluate or look over my back or neck. You can clearly see I’m hunch back from this. Meaning I have chronic back pain in 2 areas. Lower n mid back. When will Drs pay more attention to us? I just can’t understand it. It’s like they don’t have the time to study up on issues or talk w other Drs or Specialists to see if they’ve encountered such a thing. I can’t believe we’re the only ones with this problem. I’ve had this nearly 2 1/2 yrs now. I’m goin to Ann Arbor U of M next week n I Pray after their tests they know what my symptoms are all about. These vibrations r miserable at times. I’ve cried on my Dear Husband of 44 yrs shoulders since these started. My family is very patient of me. My lower half from mid back down to my feet. It’s like sitting on a rough motorcycle for hours but 10 times that amount. Some days like now it’s really angry. They’re rumbling to hard where I can just about hear it. I’m sure it’s spinal which explains my spondylitis or occipital nerves cause occasionally I can almost feel it at my chest n arms a few times. Not often just few times but they never seem to rest and I have to go to sleep this way. And when I wake up yep, they’re still w me. Only once I didn’t feel it for a day. And that’s when I had my total knee replacement n Nov. 21’ but I’m thinking that was due to maybe the nerve block or extremes plus the fentanyl that put me out. But 2nd day later they gradually built back up. We’re the only ones that knows how our Bodies work. I’m gonna have to be more voice full to get the needed attention. I know 1 Neurologist said last yr that might be next thing to go see Mayo Clinic. But I’m not sure how that works. My husband is retired but I do have good insurance (blue cross) darn these r Angry right now. I know after these started back in 20’ I was freaking out. My hands n arms was swinging like PD. Most people I’d imagine couldn’t handle this. I’m so grateful for my family and friends plus you Folks here. Knowing that I’m Not the only one. Our Drs need to follow up more n not get to over whelmed w getting more new patients. They should study up more on things I believe. There’s more diseases etc out there to understand. It can’t be just making another buck. I really appreciate responses to this. I’m so glad but sorry that I’m not imagining this. I just wish my Drs could feel this for 30 seconds n maybe it’ll dawn on them “yes, does feel like spine problems or how can anyone live w this? “ Thank you so much for your support n hopefully someone knows more about this. God Bless us All!

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Profile picture for luckymspenny1 @luckymspenny1

I have had these internal fluttering, vibrations, or buzzing for almost 2 and half yrs now. Started before I had Covid and I have never been vaccinated, that’s my choice for not injecting something into my body that I know nothing about, so please keep all those comments to yourself. I’m here to discuss the symptoms I experience like many others, I too experience them only when lying in my bed, upon waking or falling asleep. Once I’m awake, moving around I don’t experience the vibrational fluttering. I was very scared when they first started, talked with a few drs, heart,spine and general. All said it’s anxiety, I do not believe it because I have no anxiety or stress in my life anymore, yet they are still present. I have had several tests for heart, MRI, and nothing seems to pin point the problem. I believe it has something to do with my central nervous system. All the other drs just want to push drugs on me. I am taking gabapentin and high blood pressure meds. If anyone finds any answers as to what this is or the cause, please share with the rest of us. Thanks

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It happens to me as well. I am currently on klonopin which I take at bedtime and it stops it!!

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Profile picture for Rachel, Volunteer Mentor @rwinney

Hello and welcome @luckymspenny1 and @7881188. Thank you for joining the conversation about internal vibrations, tingling, buzzing, shaky leg, and all that other not so fun stuff.

You're both asking the great question of, "what is this and why is it happening?" Are odd sensations from COVID or maybe from the vaccine itself? Interestingly enough one of you has had COVID and the other has not, and one of you has been vaccinated and the other has not. If you scroll back through this conversation thread page by page you will find you're not alone in wondering. Many tests later prove nothing is wrong, many doctors later brush it off as anxiety. It is neurological, but why?

Because I have Central Sensitization Syndrome (CSS) and have experienced symptoms like restless leg syndrome, internal vibrations, buzzing, shocks, etc...I can offer you information about CSS that may help answer your questions. I will say that anxiety can definitely increase these symptoms, but not likely to cause them as some doctors chalk it up to.

I'd like to introduce you to Mayo Clinic's Dr. Sletten who heads up the Mayo Clinic Pain Rehabilitation Center. He offers an in depth look of CSS and explains the how the central and peripheral nervous systems can be affected with upregulation and changes. Here is a video explaining more -

Central Sensitization Syndrome by Dr. Christopher Sletten:

- https://www.youtube.com/watch

I hope this helps explain some of what you're experiencing. Would you mind letting me know your thoughts after watching the video? There is a lot to digest. Does any of it resonate with you?

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My doctor put me on klonopin and it doesn’t happen to me when I’m falling asleep. It must have something to do with GABA Neurotransmitters.
Let me know what you think?

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Profile picture for doriandaniel49 @doriandaniel49

My doctor put me on klonopin and it doesn’t happen to me when I’m falling asleep. It must have something to do with GABA Neurotransmitters.
Let me know what you think?

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Great news that klonopin is helping. I'm not familiar with GABA Neurotransmitters to offer my opinion. Have you researched or asked your doctors opinion?

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Profile picture for Rachel, Volunteer Mentor @rwinney

Great news that klonopin is helping. I'm not familiar with GABA Neurotransmitters to offer my opinion. Have you researched or asked your doctors opinion?

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Yes,
But I watched the video on this site and I’m going to try cognitive behavioral therapy as well because I have chronic pain to back and neck.

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Profile picture for doriandaniel49 @doriandaniel49

Yes,
But I watched the video on this site and I’m going to try cognitive behavioral therapy as well because I have chronic pain to back and neck.

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Fantastic! Yes, the video by Dr. Sletten is amazing. I'm so glad you found it helpful. I highly recommend CBT. It has helped me tremendously manage chronic pain and symptoms.

Have you considered the Mayo Pain Rehabilitation Center or are you seeking CBT independently?

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Profile picture for Rachel, Volunteer Mentor @rwinney

Fantastic! Yes, the video by Dr. Sletten is amazing. I'm so glad you found it helpful. I highly recommend CBT. It has helped me tremendously manage chronic pain and symptoms.

Have you considered the Mayo Pain Rehabilitation Center or are you seeking CBT independently?

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I live in Charlotte North Carolina. I wonder if there is one here. If so I would go. Will check now. I’m so glad that helped you!!

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There are only three Mayo PRC's - Minnesota, Arizona and Florida.

Here is an overview of the program:

- https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691

Might you consider applying to Jacksonville, FL as it's closest to NC? Insurance is the first step however as the program is very expensive. Do you have out of network coverage?

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Profile picture for doriandaniel49 @doriandaniel49

It happens to me as well. I am currently on klonopin which I take at bedtime and it stops it!!

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Hi, but careful w the Klonopin it's habit forming and I say it by experience, used to take 0.25 Xanax, the smallest dose, and I only took have of this and still got addicted and had to go to a Dr to help me quit.

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