Hello @veronicat and @lisalucier
I would be curious also to know what symptoms have made you decide to have the surgery @veronicat. Like @lisalucier my experience with the pessary was not a good one at all. For about 3 weeks it was great. And then I began to have bleeding. I am sure I did not notice it at first because I had the pessary in but at some point I realized I was bleeding as it came through the pessary. I could not get it out and had to have the doctor take it out. I waited a while and then tried the pessary again and sure enough began to bleed again. At some point the rubbing caused bleeding even without a pessary. Since I had been through menopause a few years before, I really wasn't interested in dealing with something resembling periods again (except less predictable). If I would do anything at all exerting, I would start to bleed. And then, woke up one morning and the prolapse was protruding so much I could not urinate. When I went to my urogynecologist, he used a catheter to clear my bladder. He looked at me and said something to the effect of "We are here for you but I think you would be so much happier if you would get this fixed." This was Dr. Antonini who I have mentioned before. I love him. No pressure, No judgement. He is just a very kind man and talented surgeon who understands women extremely well. Probably due to the fact that he is married to a gynecologist. Anyway, there are a lot of studies about the fact that pessaries are not a long-term solution for very many women. Something like one year after trying it, only a very small percentage of women are still using one. Someone mentioned the other day on this forum that they were using another device to support their prolapse but I don't believe they said what it was. I would be curious to know. @lisalucier did you have a surgery with mesh? Just curious because I think this is the part that causes a lot of us to delay our surgeries. But it turned out it was not really anything to be afraid of, at least in my case and was really the only option for me unless I wanted to have the surgery again in a few years. Best to you @veronicat. You will be so glad once this is behind you..
@baxtersmom - interesting you asked about the mesh. I recall all the news stories about mesh, and know what you are referring to. I can't remember the timing of that with my surgery, however.
I did not have any mesh in my procedure. I also have had my bladder fall down partway again (I've gotten familiar with the feelings, as I'm sure have many of the others in this discussion), and I saw the urogyn's NP, who confirmed that this winter. Evidently the bladder falling again to some degree happens to a certain percentage of women around 7 years out from surgery, which is where I am. I was also told my ethnicity (Northern European) puts me at greater risk for stretchy ligaments (i.e., more likely for the bladder to fall back down).
What you've said really kind of makes me wish I had the mesh for extra "stay up" insurance. I would be very, very slow to have this surgery again, as the recovery was kind of a bear in my case. Worthwhile to have it fixed, but it took a lot of my time to get fully better (as in not having to take a nap daily, which is not normal for me). Supposedly having a revision also has the potential to make things too short, and can be uncomfortable in the intimacy department.
@baxtersmom - interesting you asked about the mesh. I recall all the news stories about mesh, and know what you are referring to. I can't remember the timing of that with my surgery, however.
I did not have any mesh in my procedure. I also have had my bladder fall down partway again (I've gotten familiar with the feelings, as I'm sure have many of the others in this discussion), and I saw the urogyn's NP, who confirmed that this winter. Evidently the bladder falling again to some degree happens to a certain percentage of women around 7 years out from surgery, which is where I am. I was also told my ethnicity (Northern European) puts me at greater risk for stretchy ligaments (i.e., more likely for the bladder to fall back down).
What you've said really kind of makes me wish I had the mesh for extra "stay up" insurance. I would be very, very slow to have this surgery again, as the recovery was kind of a bear in my case. Worthwhile to have it fixed, but it took a lot of my time to get fully better (as in not having to take a nap daily, which is not normal for me). Supposedly having a revision also has the potential to make things too short, and can be uncomfortable in the intimacy department.
Dear Lisa, from my understanding you had surgery without mesh, and now you have symptoms of prolapse again.
I had total hysterectomy due to endometrial cancer, stage 1. That was 3 months ago. After the hysterectomy my bladder prolapsed. I feel heavy down there. Feels like something is falling out. I don’t have any problems with urinating and leaking. Just the bladder. So me being 50 and still very active, live exercising I have decided to do surgery in US because I believe you have the best Urogynecologiest in the world.
Just don’t know who to choose. Looks like Texas has few good surgeons. Also Mayo Rochester - has some good doctors.
I will probably come to do the surgery in end of August/ September.
How long you prolapse surgery without mesh last it? Regards
Dear Lisa, from my understanding you had surgery without mesh, and now you have symptoms of prolapse again.
I had total hysterectomy due to endometrial cancer, stage 1. That was 3 months ago. After the hysterectomy my bladder prolapsed. I feel heavy down there. Feels like something is falling out. I don’t have any problems with urinating and leaking. Just the bladder. So me being 50 and still very active, live exercising I have decided to do surgery in US because I believe you have the best Urogynecologiest in the world.
Just don’t know who to choose. Looks like Texas has few good surgeons. Also Mayo Rochester - has some good doctors.
I will probably come to do the surgery in end of August/ September.
How long you prolapse surgery without mesh last it? Regards
@veronicat Urogynecology is such a new specialty that it can be difficult to find a good one. I live in NH and there is only one up here, and she was booked about 6 months out. She is supposed to be good though. I didn't want to have that long so I went to Mass General in Boston. They have a department with 4 urogynecologists. I know there are other good ones in Boston also, my daughter's sister-in-law is one.
Good luck with this. I have not had prolapse, just severe retention problems which I plan to get a botox injection for.
JK
Dear Lisa, from my understanding you had surgery without mesh, and now you have symptoms of prolapse again.
I had total hysterectomy due to endometrial cancer, stage 1. That was 3 months ago. After the hysterectomy my bladder prolapsed. I feel heavy down there. Feels like something is falling out. I don’t have any problems with urinating and leaking. Just the bladder. So me being 50 and still very active, live exercising I have decided to do surgery in US because I believe you have the best Urogynecologiest in the world.
Just don’t know who to choose. Looks like Texas has few good surgeons. Also Mayo Rochester - has some good doctors.
I will probably come to do the surgery in end of August/ September.
How long you prolapse surgery without mesh last it? Regards
@veronicat - knowing how challenging my symptoms got very near to when I decided to have prolapse repair surgery, just wanted to check in with you on how things are going with your symptoms. Are you still feeling the heaviness? Does anything make it feel better?
@veronicat - knowing how challenging my symptoms got very near to when I decided to have prolapse repair surgery, just wanted to check in with you on how things are going with your symptoms. Are you still feeling the heaviness? Does anything make it feel better?
Hi Lisa, At the moment I am doing some Kegel exercise so this helps little.
I also spent lots of time in my bed, can’t stay longer than 2-3 hours on my feet. I get very tired and feel heavy down there.
Hope I can go soon to US and do the surgery.
Lisa, how long your repair after the surgery last before you felt that you have slight prolapse again?
Hi Lisa, At the moment I am doing some Kegel exercise so this helps little.
I also spent lots of time in my bed, can’t stay longer than 2-3 hours on my feet. I get very tired and feel heavy down there.
Hope I can go soon to US and do the surgery.
Lisa, how long your repair after the surgery last before you felt that you have slight prolapse again?
Lisa Lucier, Moderator | @lisalucier | Jul 12, 2019
Thought you all might be interested in today's Connect member spotlight, which features a member who's been involved in this discussion on sacrocolpopexy and cystocele repair, @baxtersmomhttps://connect.mayoclinic.org/page/about-connect/newsfeed-post/pursuing-life-balance-meet-baxtersmom. I think you will enjoy reading about her favorite foods, hobbies, background teaching in a university, and how she came to Mayo Clinic Connect. Please read her story and make a comment.
Hello and Thank you for asking....I'm still not able to work I am better then I was but I still have the sensation of something in side that isn't there and I still get pain on the left side I find yoga is the best help for me but I am done with any drugs (they all made me sick) i'm trying to use herbs valerian root and hops and cbd oil have seemed to give me the most relief thank you again for asking
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@baxtersmom - interesting you asked about the mesh. I recall all the news stories about mesh, and know what you are referring to. I can't remember the timing of that with my surgery, however.
I did not have any mesh in my procedure. I also have had my bladder fall down partway again (I've gotten familiar with the feelings, as I'm sure have many of the others in this discussion), and I saw the urogyn's NP, who confirmed that this winter. Evidently the bladder falling again to some degree happens to a certain percentage of women around 7 years out from surgery, which is where I am. I was also told my ethnicity (Northern European) puts me at greater risk for stretchy ligaments (i.e., more likely for the bladder to fall back down).
What you've said really kind of makes me wish I had the mesh for extra "stay up" insurance. I would be very, very slow to have this surgery again, as the recovery was kind of a bear in my case. Worthwhile to have it fixed, but it took a lot of my time to get fully better (as in not having to take a nap daily, which is not normal for me). Supposedly having a revision also has the potential to make things too short, and can be uncomfortable in the intimacy department.
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Hug
2 ReactionsDear Lisa, from my understanding you had surgery without mesh, and now you have symptoms of prolapse again.
I had total hysterectomy due to endometrial cancer, stage 1. That was 3 months ago. After the hysterectomy my bladder prolapsed. I feel heavy down there. Feels like something is falling out. I don’t have any problems with urinating and leaking. Just the bladder. So me being 50 and still very active, live exercising I have decided to do surgery in US because I believe you have the best Urogynecologiest in the world.
Just don’t know who to choose. Looks like Texas has few good surgeons. Also Mayo Rochester - has some good doctors.
I will probably come to do the surgery in end of August/ September.
How long you prolapse surgery without mesh last it? Regards
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Like -
Helpful -
Hug
2 Reactions@veronicat Urogynecology is such a new specialty that it can be difficult to find a good one. I live in NH and there is only one up here, and she was booked about 6 months out. She is supposed to be good though. I didn't want to have that long so I went to Mass General in Boston. They have a department with 4 urogynecologists. I know there are other good ones in Boston also, my daughter's sister-in-law is one.
Good luck with this. I have not had prolapse, just severe retention problems which I plan to get a botox injection for.
JK
@veronicat - knowing how challenging my symptoms got very near to when I decided to have prolapse repair surgery, just wanted to check in with you on how things are going with your symptoms. Are you still feeling the heaviness? Does anything make it feel better?
Hi Lisa, At the moment I am doing some Kegel exercise so this helps little.
I also spent lots of time in my bed, can’t stay longer than 2-3 hours on my feet. I get very tired and feel heavy down there.
Hope I can go soon to US and do the surgery.
Lisa, how long your repair after the surgery last before you felt that you have slight prolapse again?
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Hug
1 ReactionProbably 6 years, @veronicat, before some dipping down again of my bladder.
Thanks for replying, Lisa.
Do you mind sharing who is the doctor who did your surgery without mesh?
Kind regards
@veronicat - my guess is that it was done that way because that was standard several years ago when I had my surgery.
Thought you all might be interested in today's Connect member spotlight, which features a member who's been involved in this discussion on sacrocolpopexy and cystocele repair, @baxtersmom https://connect.mayoclinic.org/page/about-connect/newsfeed-post/pursuing-life-balance-meet-baxtersmom. I think you will enjoy reading about her favorite foods, hobbies, background teaching in a university, and how she came to Mayo Clinic Connect. Please read her story and make a comment.
Hi, @pizon - just wondering if you are continuing to have pain in your left side and whether you've been able to work lately?